- CASE FILE
Idiopathic cervical myelothapy - paralyzed me, but how? I was healthy to stricken in less than one day. My life as I knew it has changed.
ABOUT THIS CASE FILE
In the summer of 2012, I woke up with numbness & tingling in both of my feet. By mid-morning, my left leg started to drag. By 4pm that same day, I was hospitalized and numerous tests were ran - MRI, spinal tap, CT scans, etc. A large steroid dose was prescribed to try and halt whatever was happening to my body. I spent 2-1/2 months in the hospital seeking a diagnosis and rehabilitation to regain strength was started. Seven years later, I am living with partial paralysis (more predominate on my left side) that affects bowel, bladder, hot/cold sensations, use of a walker and AFO (for drop foot). No left leg hip flexor, knee flexor, etc. I was tested for Lyme disease, guillain barre, MS,etc. Doctors were eager to say Transverse Myelitis, MS and finally cervical myelothapy.
I'm seeking your help to see if someone can give me an exact diagnosis and to know if there is a cure or potential help. The only prior medical condition was a C5-C6 fusion as a result of a head-on-car collision. The oddity of all of this is a "lesion" in the C3-C7 area. Is this related (Syringomyelia)? For 7 years I have tried to put my life back together. I cannot walk without my walker and a AFO to support my drop foot. I have to be careful in hotcold conditions, I am a fall risk and I know that without a cure and in my current situation, I will never be able to live alone because of my limited abilities.
I have seen doctors at Johns Hopkins, Mayo Clinic, University of Michigan and Michigan State University. I currently take medicine for spasticity and bladder control. While in the hospital they tried plasma aspherisis and acute physical therapy. There has been no other course of treatment other than occasional physical therapy sessions as well as my initiative of acupuncture, massage therapy, pool exercising and workouts at a local gym.