- CASE FILE
Possibly MS, possibly P.O.T.SI have had a range of symptoms in the past few years
ABOUT THIS CASE FILE
Have seen Primary doctor for all issues, and she sent me to a Nuerologist. Primary care doctor said this sounded serious, and her thoughts were I probably had MS. I went to see a Nuerologist and he said that MS was quite possible, but had to rule out other similar diagnoses before that conclusion. He sent me to get a MRI a VNG, and EMG test done. Both VNG and EMG were done at the same office and both came back "normal". I ended up going to the ER before my scheduled MRI appointment and they took a cat scan as well as MRI of my brain, and of my C-Spine. Both came back with no conclusion to my symptoms. ER Nuerologist said I didn't have a brain tumor, but I had lesions.(not enough to conclude MS) but MS wasn't ruled out as a possibility, because they didn't have another MRI to see how these lesions have come about. The ER Nuerologist said he thought I might have Postural Orthostatic Tachacardia Syndrome (P.O.T.S) which is a form of dysautonomia. I had filled out paperwork to have my scans transferred to my Nuerologist office. Only come to find no one had transfered such scans. I went back and forth filling out the same paperwork to release such info from my doctor's office and the hospital. After getting charged for all three of my doctor's visits which were meant to be follow up to these tests. No one could concluded anything without my scans which never reached my doctor's office. I lost faith at that point with trying to find out why I was having these symptoms continuously. I tried to just deal, and follow the suggestions of changing diet, and I had already been working so constantly, which is the way I looked at working out. I lift and walk and keep constant movement while at work as a restaurant manager. I also went down in hours to relieve some stress to see if that what was giving my body this craziness. Things kept escalating, everything hurt, I was constantly in pain and under alot of stress, even without a huge workload. My job had noticed my deterioration and asked me what I wanted to do. (I work with great people that care, local restaurant folk) I decided to go back to serving tables, I had shorter shifts and was still able to make a good amount of money at that time, and could ease the stress be picking and choosing my schedule. But since then I have still been going down hill with more symptoms adding to the list.
It got to a point where I wanted to commit suicide, I had a conversation with my fiance, my best friend. He asked me to get help, so I checked myself into a hospital, who had a in house treatment center. While I was there, for six days, they heard and listened to the amounts of physical, and mental pain, as well as my list of symptoms. They put me on medication and that straightened out my anxiety, and depression issues, as well as touched on my body aches and pain issues. I am currently seeing a nurse practitioner who is keeping my depression/anxiety meds going, and I will be seeing a counselor soon.
I still don't have faith in doctors who will listen and take in all of my other symptoms. I also am at the point where I can barely make it to work 1-2 days a week, which is not bringing much home. I will have to seek out accchs and hope they can provided me with insurance that will hopefully put me in the hands of doctors that will listen as well as help.
I pride myself on my work. That has triggered alot of anxiety and depression that I don't feel able to work as much as needed. I am a mother of two, my daughter is 3 and my son is 5. My son is Autistic, and is currently going to school and getting therapies. It's always been alot to take in with that, but with my issues on top it feels never ending. I hope that one day I may be able to provide more for my family, but for now I'm trying my best to be the best mother I can with the time I have at home with them.