- CASE FILE
Every doctor thinks I have an autoimmune disorder but no one can diagnose me..
ABOUT THIS CASE FILE
My story starts from the beginning, my life has been a domino effect of medical issue after medical issue now to the point where I am scared to go to sleep, I am afraid to be alone because I don't know sometimes if I will be okay.. I was born with sleep apnea and had to be on a machine to help me breathe the first 6 months of my life. I then was hospitalized for weeks in the hospital with rotovirus at age 5. I have had a tonsillectomy and appendectomy due to enlargement of tonsils and appendix about to rupture. I then went to USC at age 12 to get a second opinion on what I was told was schambergs disease (and was confirmed) after falling asleep in class, not eating and not feeling well I was diagnosed with Epstein Barr Virus at age 13. I had asthma my whole life until recently when I found out I no longer had asthma. Since diagnosed with Epstein Barr Virus I have had recurrences of not only Epstein Barr Virus but also chronic splenomegaly..in college I was diagnosed with Chronic Epstein Barr Virus. I have had many ovarian cysts rupture and also endometriosis and surgery to remove the endometriosis in 2015 where they also did a bladder scope and found out I have interstitial cystitis. For about 6 months out of the year for the past 4 years I have been sick with some kind of infection or virus. I am in and out of hospitals and urgent care with the chest pain, shortness of breath, the flu back to back, bronchitis, pneumonia, etc all winter long with costochondritis consistently. January 2016 I woke up feeling like I was suffocating- I have had a bronchoscopy and a right and left heart Cath as well as loads of other medical tests to try and diagnosis my hypoxemia, SOB, and chest pain. I have not had a single diagnosis since this started. I have use oxygen now and have had no answers found as to what causes my oxygen to drop. In the past 3 months I have had a significant decline in memory, speech, ability to perform tasks, fatigue, confusion, among many other things which have me very debilitated. I have tried everything to find any answer and the last rheumatologist I saw said that I have to many medical issues and symptoms to be able to diagnose me...I am looking for an answer for why all of a sudden I feel like I have no control over my body..before all of this started in 2016 I was a normal 23-24 year old I was active in hot yoga, traveling, I went out with my friends, worked full time, went to school...I just want to figure out what is wrong with me so I can have my life back..