- CASE FILE
I have Adhesive Arachnoiditis. My specialist retired and no one will treat me. Patients all over the US are having the same problem.
ABOUT THIS CASE FILE
My nerves in my spinal cord are clumped and they are sticking to the arachnoid lining wall area of my spinal cord and I have inflammation of my Cauda Equina at my tailbone. I experience what feels like electric shocks all through my body. From the waist down it feels like my tissues are compressed to the bone like I am trapped under a building and I can not get relief from the compression. I have saddle anesthesia. I have numbness in all my limbs that hurt so bad! My body's temp. gage is out of wack. At times it feels like so much heat is coming from the innermost core of my body. It is so uncomfortable I want to climb out of my body. I have to sip ice water until it passes. I want to climb out of my body to escape all my symptoms but can not! My head feels like there is a screen over my scalp that electricity is going through constantly. My brain sounds like there's a short circuit of electricity that interferes with my concentration. My body is tortured all the time with relentless, agonizing pain! I have been diagnosed as having Adhesive Arachnoiditis and Caudia Equina Inflammation, Central Pain Syndrome, and Chronic Pain Syndrome. Many people have committed suicide all across the US because they no longer have pain relief. Very few have a doctor who will treat them. I spend my days laying on my right side, knees bent with a pillow between them with my feet separated by two metal bars to alleviate pressure on the lower leg. Most of my time in spurts I am trying to find help on the internet to no avail. I have to lay down in the back seat of our vehicle to go away. Riding is torture! I have to sit on a walker with my tailbone hanging over the back. I use a walker because of balance issues regarding my spinal fluid being impaired. All the people with Adhesive Arachnoiditis can not take PT it makes it worse, SCS do not help, we can not have a morphine pump either because of the location of the problem it makes it worse. I had repeated epidurals, steroid injections, acupuncture, and burning of the nerves. Every day is hell! No one deserves this let alone not finding relief or a doctor! YOU ARE MY ONLY HOPE! PLEASE I BEG YOU PLEASE HELP ME AND OTHERS LIKE ME! THANK YOU FOR YOUR TIME.