- CASE FILE
Pre-med college student with chronic, daily "headaches" at the base of my skull. Full neuro workup yet still unable to determine a cause
ABOUT THIS CASE FILE
I've been getting these debilitating "headaches" at the base of my skull since January of 2017. They start about 30 minutes after I get out of bed and get worse as the day goes on, and also get especially bad the longer I'm upright. It's mainly a sharp, burning pain right at the base, on the left and right side. As a pre-med college student obviously this is a huge issue. I've taken a few semesters off of school over the years due to how bad the pain gets. I've undergone tons of testing; cervical x-rays. cervical and brain MRI with and without contrast, CT myelogram, two high volume blood patches just in case of a CSF leak, nerve blocks, plus dozens of medications such as: Aimovig, Emgality, Pamelor, Indomethacin, beta blockers, Voltaren, Relpax, and all triptans. The only medications that seem to somewhat help are Ultram and Fioricet. As for other things that help; laying down, ice, and sometimes caffeine. I've been seeing the "top" headache specialist in my area and he's basically out of ideas except for saying these definitely aren't migraines. I'd be forever grateful to find some answers that could hopefully allow me to get my life on track and pursue my dreams of becoming a PA. I do have a diagnosis of Postural Orthostatic Tachycardia Syndrome (POTS) and underwent surgery for something called Median Arcuate Ligament Syndrome (MALS) in December 2016. After the MALS surgery I received an epidural for pain management in the hospital, hence why a CSF leak was heavily investigated. Thanks everyone!!