- CASE FILE
I’ve been experiencing flu like symptoms, debilitating fatigue, joint pain and severe migraines for three years now. Looking for answers.
ABOUT THIS CASE FILE
I’m looking for help for an understanding of why I became suddenly ill. I was once very healthy and just woke one morning with my right hand swollen very large almost like I was stung by something but no marks anywhere. I saw a dr had xrays no specific findings and put on a medrol dose pac. Aprox 1 week later I began with flu like symptoms and everything spiraled down from there. I was a dental assistant for ten years and was beginning to be unable to perform my job. My fingers would lock in place when holding things, I began having severe joint pain, running low grade fevers, severe migraines to where I’d have to lay down in an unused dark room at work. The fatigue became so unbearable I couldn’t even get out of bed. I saw my primary care who ran blood work that came back showing my Ana levels to be high so I was then sent to rheumatology. There I was found to have high rh factor but no problems with my organs so I became a guinea pig for process of elimination of biological medications to see if my symptoms would respond to the meds. I was constantly having bad reactions and heightened sensitivity to everything meds, smells, sounds, visuals, my skin is even sensitive to most products I put on now or try to use. I have to use organic deodorant now or my lymphnodes in my under arms swell up several at a time on both sides feeling like large marbles that get red raised and very tender. I also saw a neurologist at one point who tested me for MS and that came back negative doing a spinal which I don’t believe they were able to get enough fluid. Also a Lyme test was done the western blot and Elisa. I was positive for EBV but non reactive. I’ve been admitted to the ER for possible TIA and was diagnosed with Complex Migraine Syndrome but was also told my prolactin levels were very high and I have a 3mm growth of some sort on my pituitary gland which was more or less shrugged off because of its size. I haven’t been able to work due to all my symptoms. I’m unable to make plans until I wake up because I never know how I will feel. I have to be very cautious on how I use my energy day to day because the smallest amount of overexertion and I’m unable to do anything at all for days or even a week after. This is consisting of regular daily things like showering doing my hair and getting dressed to go to the store. If I go to the grocery store I can’t cook or do anything else that day. I have to spread chores throughout the week. Multi tasking is no longer something I’m capable of. It’s hard to focus on one thing and stay on track. It takes me a very long time to carry out small things that I used to be able to accomplish like nothing. I’ve been waking up dizzy lately on occasions and my rheumatologist has done bloodwork and said my sugar levels were low and this was after eating at least an hour prior to bloodwork. He advised me to follow up with pcp but the dr I was seeing at the time brushed it off like not a big deal and said to watch my diet. I now carry glucose liquid with me just in case because I have felt like I was going to pass out. I suffer from brain fog. At this time I am currently taking Plaquenil at 200mg twice a day for undifferentiated connective tissue disease along with prednisone 5mg a day. I feel I may have to be bumped back up to at least 10mg a day again because it seems the prednisone is the only thing that calms the inflammation. My new rheumatologist is trying to help as much as he can but I haven’t had the finances or insurance to get anymore testing done or updated. I had to see an eye dr because I’ve been experiencing very dry eyes and having pain deep behind my eyes and feeling a strain when I move my eyes however since I began the oral prednisone it has helped with that. I was using prednisone in a drop form prior but everyone I stopped the pain in my eyes would begin again. I use Aimovig injections to try and control the migraine pain which has helped quite a bit but I still do get them. When I flare, which is often I can feel my body start to feel like I’m getting the flu and my temperature increases to a low grade fever. In 2017 I had my breast implants removed as a possible trigger to my over active immune system in hopes that would help. Which I do feel like it did calm a few of my symptoms down. I have found stress to be a huge trigger to my flare ups which is hard to avoid. I really just don’t understand how I could’ve just woke like this one day. I was so healthy, eating exercise daily doing yoga,Pilates, and bike riding and kayaking. Now I can’t get in my bike because I’m afraid with my balance I’ll fall and I can’t grip the handles for long because I have such weakness in my right hand and both go tingly. Kayaking requires strength from my hands as well. I try to at least walk but the muscles in my legs feel so tired and sore within a minute of using them now like I just did heavy squats with weights and I feel overexerted and winded within seconds.