- CASE FILE
chronic dizziness for 11/2 years, began w/3 severe bouts of vertigo 2017 & paresthesias, extremities, back of head comes & goes
ABOUT THIS CASE FILE
in 2016, I had an upset stomach that lasted for about 6 weeks, there was a lot of stress in 2016, 2017. I was eating too much chocolate, ice cream and had gained weight ( i have historically taken good care of myself, exercised, ate well).In 2017 i had 2 separate severe bouts of vertigo, each time getting worse . the 2nd time , my vision got distorted. a few days after 3rd time , i developed what i thought was a mild flu, low grade fever ( a few days) and cough which resolved in a week or 2. after 3rd vertigo i have not felt normal since. I have chronic dizziness, tinnitus and paresthesias in extremities ( sometimes not often in back of my head or face). last year i had great difficulty walking, and git worse and wrose, was unable to sleep for days at a time, with bad paresthesias. AFter numerous doctors ( 2 cardiologists, 4 neurologists, one the head of teh MS institute at Clombia presbyterian Dr Apatoff, a hematologist, endocrinologist, 4 ENT's, blood tests, audiology tests, urine tests, MRi's i was told I had first vestibular neuronitis and was told it would go away in a few weeks. It didn't. Then told vestibular migraine disorder, I also went to a pyschiatric NP who discovered my b12 was low and getting lower and have the MTHFR gene mutation ( heterzygous). I started taking b12 injections, clonazapam and started feelign, better, also went on LEAP diet for reducing inflammation where i have lost 17 lbs. over the past year. able to walk normal, sleep better but still dizziness, eye fatigue and eyes heavy at times,with slight intermittent paresthesias. I walk every day and try to do a little weight lifting with light weights and core exercises but I cannot work out the way I used to because it makes me feel worse if I move around too much. went to a vestibular therapist worked with her for 9 months but got stuck, reached maximum level of improvement, she recommended me to a neurologist who suggested nortryptyline ( which one of ENT's had also suggested). I started taking it and thought slightly better but got stuck again, after we increased it to 50mg ( my NP was managing this as she is closer to home) i felt worse. Started getting red swollen hands with a heat flush in body. Also slight sores on tip of my tongue that would come and go. I was on metaprolol and nortryptyline and clonazapm at this time. we switched to losartin for hypertension but hands did not change. She weaned me off nortryptiline which i ended on june 9. symptoms started to get worse. went to a functional wellness chiropractor with specialty in neurology. he discovered I have a nystagmus ( I also have been seeing an acupuncturist who tried chinese herbs , but they bothered my stomach. Started AIP diet and aggressive nutritional supplementation to try to reduce my inflammation ( as my c reactive protein was running high, which i found challenging , was not eating enough, lost weight. after some modifications diet was a little easier, but my paresthesias have gotten worse and i feel weak and lousy. He had me start vestibular and otokinetic vestibular exercises also. I also had tried reducing clonazapam, but am back on my prior dose as of yesterday. I am feeling worse. My NP has sent me for blood tests to rule out lupus even though m priory ANA tests prior were normal. I am at a loss. My husband and psychologist think it's all anxiety induced but i feel I have anxiety because i don't feel well. I hope someone can help me.