- CASE FILE
I have Syringomyelia. It causes severe pain & struggles. Currently ; mobility, bladder/bowel issues. I used to be a cop now I'm a mom of 2.
ABOUT THIS CASE FILE
I have Syringomyelia, scoliosis, occipital neuralgia migraines, and hashimoto's thyroiditis. It has been undetermined what has caused these conditions whether idiopathic or traumatic. I was recently re-evaluated for MS due intermittent facial numbness and difficulty with swallowing. I have mobility issues as well as memory, some speech (I have forgotten best friends name before and word slur), and bowel/bladder problems (surprise!). In 2017 drains were placed in my syrinx (that's what the Syringomyelia is called for short. They are like balloons of fluid inside my spinal cord) which helped eliminate some pain but I was numb from the ribs down after surgery. We new paralysis was a risk, but with my condition not doing it paralysis is a risk. I have muscle atrophy on my left side and increased muscle weakness in my legs. Needless to say I fall, a lot! I have regained feeling in my right side. My hands tremor sometimes, and my eyes get blurred for no reason. In March of 2019 I had lumbar fusion and that helped relieve pressure. I have now been perscribed a brace for foot drop, I use a cane and chair for mobility. Although I'm pretty stubborn and hate using them. I get depressed. I used to be so active. I am a former street cop. A mother of two awsome boys and have an amazing husband. I hope someday my condition can be made public and a cure, or at least an attempt to improve the quality of life is made. For those of us that suffer with Syringomyelia, it feels irreversible. We feel alone. The nerve damage just marches on and we are just along for the ride. My syrix is in my thorasic area. It controls my ability to breathe, my heart, oregon function as well as core stability. I never want to say it outloud, but I hope my heart doesn't give up before I'm ready. I dont want to leave me boys without a mama. Not to mention, I'm not done dammit!