- CASE FILE
Would love input on how to get my Autoimmune Diseased body into Remission.
ABOUT THIS CASE FILE
Well a medical mystery I would say just about every doctor I have encountered has said...
Hello everyone and thank you in advance for taking the time to read this.
My name is Ashley and I have a laundry list of medical conditions and symptoms. I have been fighting for my life and really putting all I have into doctors helping me and figuring things out... Which has been the struggle of my life. When I was 12 years old I went to the Grand Canyon and camped for 2 weeks with my family in this very beautiful forest type area. When I got home I wasn’t feeling great and had bug bites all over. I then ended up in the Mayo Clinic in Scottsdale, AZ and was diagnosed with Erythema Nodosum. Got treated for it and moved on with no reoccurrence. When I was 25 that’s when my whole life changed. I had a grand mal seizure. First ever and only one ever. When I was taken to the ER the doctor recommended I immediately follow up with Cardiology. Well that was a shocker considering I had a seizure not a heart attack! Either way got in right away two days later to a Cardiologist. When he did his EKG he was stunned and thought I might have a rare heart issue called Brugada Syndrome. He told me we needed to act fast and I was devastated when leaving and looking into this condition. Things did go pretty quickly. Soon enough I was with the head of Cardiology at Scripps having an EP Study. Long story short I did NOT have Brugada and after a slew of every other heart test they found I have Inappropriate Sinus Tachycardia and the arrhythmia is located under the ventricles of my heart so it is non operable. I’m on two medications daily and had a loop recorder in for 4 years and have moved on and my heart is pretty much regulated. Moved on to Neurology and had EEG and was on anti seizure meds for a few years as precaution and ended up getting diagnosed with Chronic Migraines. I get Botox treatment which helps tremendously and has essentially eliminated them all together. After all of this was under control I still was just feeling so terrible day in and day out. Exhausted, pain all over my body, brain fog, memory loss, mental changes ect. I ended up going to an integrative doctor after my regular MD just kept sending me away saying I was fine because my “Blood Work is normal”. So after going to the new doctor he did very specific blood tests and when I came back for my results he said you have Lyme Disease, Chronic Strep, H pylori. I was totally blown away. I started the antibiotic treatment right away and almost died. Went to the ER several times and was encouraged to quit the treatment as I had a terrible Herxheimer reaction. I am the same I was all those years ago today. Can’t seem to get my health back no matter all the things I have tried. Nothing works and Lyme disease is too under studied and doctors aren’t educated enough to help me. My PCP said I’m his “ONLY” Lyme patient which is discouraging. I now have connective tissue tumors covering my lining in my stomach(Painful and no treatment available), endometriosis, Hashimotos, Lyme Arthritis and so much more. I just want my life back and to be the happy person I truly am. But it’s too hard to find. No one knows how to help me. I can only help myself so much with all the medications, natural treatments, diets, biofeedback, vitamins and more. I am lost now. I need some guidance from others that struggle like me and have had some success just obtaining quality of life in a remission state. I’m a mother to a beautiful 11 year old daughter and married to the love of my life and I feel like I’m letting them down by being in this condition.
Love to everyone and thank you!