- CASE FILE
I have a mysterious Autoimmune disease. Suffering with multiple issues including hearing loss in one ear and photophobia in both eyes.
ABOUT THIS CASE FILE
Over the past few years I have had sudden and increasing mixed hearing loss, (now moderate to severe) I have had two ear surgeries which the doctor said could restore my hearing, but it did not and it continues to worsen. I also have photophobia, an extreme sensitivity to sunlight, artificial lights, anything bright, fibromyalgia, adrenal gland fatigue, chronic fatigue, and an autoimmune disorder which may or may not be Sjogrens. I have chronic dry eye, dry nose and mouth. My ANA Titer has regularly been at 640 when Less than 40 is considered normal.
I've been tested for lupus, Myasthenia Gravis, Chrohn's, and other auto immune diseases, but the only thing that regularly shows up is my high ANA Titer. I have flare ups of pain in the back of both knees, with pain occurring mostly when I go from a sitting to standing position. The pain started in one knee, then the other, and varied in severity, but now when it flares, they are in both knees and very severe. It may last for 4-5 days, then out of nowhere, disappear until the next flare up. Also consistent in my blood work is the EBV (epstein-Barr).
The virus shows up on every blood test.
I did a hair analysis and one element that was off the chats was the level of BORON at 8.7 with .25-1.5 being the normal range.
There were also traces of Arsenic and Mercury as well. (I had a dentists specializing in amalgam removal, change out all 7 of my fillings)
I also did a FoodStats Antibody Assessment. (US Biotek Laboratories). The results showed food that my body was reacting to and that I should stay away from: ALL dairy, ALL eggs, Cocoa bean, Sugar Cane, Baker's Yeast, Brewers Yeast, Scallops, Wheat Gliadin, Wheat Gluten, Spelt, and Whole Wheat. So I cut all of that out of my diet and nothing has changed on repeated lab work nor in my symptoms.
I have been to numerous optometrists, ophthalmologists, neuro ophthalmologist, ENT's, a naturopathic practitioner, an acupuncturist, a masseuse and a team specializing in biofeedback. I've had two surgeries on my left ear, one on both of my eyelids to lift my lids, with both having complications not expected by the performing physicians. I have double vision which for now is correctable with prisms in my glasses. It began around the same time that I was experiencing hearing loss.
My symptoms in my eyes, ear and mouth seem to flare up very easily with stress of any kind, even "stress" brought on by positive events such as exercise. It's like my body cannot distinguish between good and bad stress.
I have migraine headaches that start behind my left eye and go the the base of my left side of the neck. I take Eletripan Hydrobromide for that. But I also get headaches on my right side that seems to coincide with the weather. I seem to get headaches on my right side when there is a high pressure, sometimes low pressure coming towards our island (Hawaii)
One huge factor that could be affecting my health is the ongoing eruptions which produce haze, which we in Hawaii refer to as VOG. I don't believe there has been any long term studies on the effects of VOG, but it has been going on since 1983. Another factor that I suspect could have triggered all or some of my symptoms was that around 2014, I received a PROLIA injection for osteoporosis. Following the one size fits all shot, I had a lot of bone pain in my legs and muscles, and I began having problems with my eyes and left ear. In addition, a bone in my left wrist started protruding under the surface of my wrist. I reported all of my symptoms to my family doctor, as well as to my gynecologist but neither thought the symptoms were due to the Prolia shot. I refused to take any subsequent shots.