- CASE FILE
In March I lost the ability to walk unassisted, feel the lower half of my body and feel like I am being squeezed around my chest and stomach
ABOUT THIS CASE FILE
It all started with a sensitivity to smells. I would smell certain foods and become extremely nauseous. The sensitivity increased to the point that all smells made me nauseous and I began to eat less. From there, I began vomiting a couple times a week with some diarrhea. That increased to vomiting everyday, multiple times a day. I barely ate anything. There were numerous trips to the doctor and the ER but no one had any answers. My doctor finally decided that I needed to be admitted. By this time I had lost over 40 pounds and couldn't keep anything down. I was vomiting constantly and having diarrhea daily. During the first night in the hospital, I awoke with the bottoms of my feet burning. While I was hospitalized, I was given Valium to see if it would help my stomach. I ended up with Vertigo and fell in the bathroom in the room. I ended up unable to stand or walk alone, numbness in my face, legs, and pelvis, and extreme pain in my feet. I was told that I may have Wernicke's Encephalopathy- I suffer from a loss of muscle coordination (ataxia) in my legs. I also had nystagmus. My hands and arms tingle as does my lower body. I have numbness in my legs and feet and numbness in my pelvic region. This pelvic numbness has lead to several toileting mishaps. I also have severe pain in my feet that is worse at night. I have some facial numbness and at one point I was drooling without knowing I was doing so. I required the use of a walker for some time but I have worked myself up to using a cane. My balance is still off and I am always a misstep from falling. I just started driving but only short distances due to the pain. I am uncomfortable sitting or laying. I have to keep socks on my feet and keep them covered to help ease some of the pain. This is not always helpful. I am currently taking Zoloft for depression, Thiamine, Lyrica, Protonix, and Propanolol. Nothing is working as I remain in pain and the numbness and weakness has persisted. It literally feels like I have electricity shooting through my body. The jolts jump from leg to leg, arm to arm, fingers to toes, face to thighs. I have random muscle twitches that cause my legs to kick. My toes cramp and curl and I must keep them covered as they stay ice cold at times. My facial numbness has led me to bite my tongue. My lips stay dry and tingly. My back and stomach feel like they are being squeezed. I feel it the most when I try to take a deep breath or when I move. If you look at me, I appear healthy. I am anything but healthy. The symptoms I experienced and the residual effects don't happen for no reason. Something caused it and it still has a grip on my body. I have seen many doctors and underwent many tests but no one has an answer. I went from being healthy and independent to sick and dependent on others. I have no life as I cannot partake in the activities that I used to. I want my body back. I want my life back. I want to be able to sit in the floor and do a puzzle with my 4 year old nephew, be able to chase him around the yard, be able to stand up without pain shooting through my feet and legs. In a span of 3 months I lost me, I just want me back. Maybe this is the way it will be from now on. If it is, let me know, and I will make my peace with things.