- CASE FILE
I was diagnosis with Bells Palsy and Essential Thrombocytosis JAK-2 mutation cause is unknown - Advance to Polycythemia Vera blood cancer.
ABOUT THIS CASE FILE
I was diagnosis with Essential Thrombocytosis at 15 years old after going to the hospital for fainting. The doctors could never determine the cause. I tested positive for the Jak-2 mutation cell and just last year I was diagnosed with Polycythemia Vera. I was told by my oncologist I will die from AML (Acute myeloid leukemia) if I didn't start treatment, due to the mutation. I'm currently 33 years old and lived most of my life sick. I have stuffer from this disease for 18 years and I'm scared I wouldn't see my kids grow up. I have to stop the mutation, I need to cause this disease to become non-reactive in my body. The agony from the disease progression over the years has mentally tarnish me. I never understood how one day I was happily anticipating going into the military; to one day being told that I'm going to die from a blood cancer that has been sucking the life out of me. I just want to feel normal again, I havent felt that in 18 years.