- CASE FILE
My daughter and I have been diagnosed with the hemiplegic migraines; however, she is more severe than I am. She is not dependable to work.
ABOUT THIS CASE FILE
Hemiplegic Migraines: migraines with an aura that creates temporary paralysis, one-sided weakness, the side that becomes weak vary, but mostly is the right side. Speech is affected; studdering and lack of being able to speak. Body spasms from just one leg to the entire body. This is not a seizure. After an attack, Christina's body is exhausted and has to sleep the remainder of the day or even two to three days after. She has to have a cool dark room and spends most of the time in her room for relief. She does not drive often due to the random muscle spasms. She needs to lay down most of the time as just sitting takes a toll on the energy she has for the day. Environmental temperature control is needed as extreme heat and cold create weakness.
We have been to Mayo Clinic and local doctors. She has tried every combination of medical treatment that has been presented to her and there is no relief. The treatment may work at first, but within five to six weeks, it is no longer effective.
Christina has been told she has hemiplegic migraines and then she has been told she just has chronic migraines. She can't have fibromyalgia along with hemiplegic migraines. but she can have fibromyalgia and chronic fatigue.
She has tried to volunteer at a few places but is not even able to be dependable to volunteer. She is 29 years old and has had this problem for at least 10 years, progressively getting worse. We both have a device to help move around during a mild episode but for Christina, that is not working much as her torso is becoming weak.