- CASE FILE
Excruciating neurological pain all over body, Prone to falling and gait issues. Diagnosed with Fibromyalgia in Jan, symptoms now worsened
ABOUT THIS CASE FILE
Please help me! I’m seeking help because I got extremely sick last summer leaving me jobless, and my world as I knew it a thing of the past! June of 2018 I began to experience tingling in my right arm. I thought because I was a caseworker and going to school full time online my arm was tired. July 2018 my arm and the pain increased to where it woke me out my sleep, and I was unable to finish a Half day at work. August 2018 I began experiencing what I know no later is neurological problems. My symptoms here extreme headaches, stabbing pains, electric shocks, sharp pains, crawling sensations, throbbing, pins and needles, burning sensations etc. These symptoms progressed to where I started loosing my balance, could barely walk from the pain, and sharp pains hitting my wrist; ankles, and knees. I eventually because of the sharp pains to my knees or ankle started falling. I was forced to get a walker after I fell about 6 times. I began to get testing. I had maybe 43 tubes of blood drawn, had MRI of brain, neck, and complete spine. The Orthopedic Surgeon said nothing suggested anything was sitting on my nerves, no lesions, etc. I began to an neurologist where I had EMG; seizure testing, and other testing that only suggested carpal tunnel in my arms. I was told I needed to go to Rheumatologist. When I went to see the Rheumatologist’s because I was having difficulty walking he gave me two shots for inflammation, which two days later I had one of the worse episodes an d couldn’t walk on my feet. I received XRay if my hip since my gait was affected. They tried gabapentin, didn’t touch the extreme pain as now I was in the bed basically bed ridden. I was told I had exhausted all the DR in Nevada and the only thing they could do for me is prescribe tramadol and steroids to keep the inflammation down. They then put me on Lyrica which would later have me admitted to the Pych ward. I was the referred to neurologist at the Mayo Clinc. I took two week trips filled with testing. I received emg again, biopsy punch of my leg and foot, automatic testing; blood tests, sleep tests etc....I was told testing showed my foot had I believe dense fiber so nearopothy was the possible reason for pain in feet. Carpal tunnel was noted but as an optional surgery; which my entire body was the issue. I was forwarded to the general dr at Mayo Clinic and was told they thought it was Fibromyalgia because of clear Testing; and tender trigger points. They believed they did not need a spinal, which I was pretty relieved because the amount of pain and testing I had withstood. On January 7th I was diagnosed with Fibromyalgia, and was told I needed to got to pain rehab in AZ for and month. I was put on 60 mg Cymbalta. My muscles was weak and had experienced great atrophy. I went to pain rehab in AZ which was by far the BEST thing I could ever do in life. I learned how to Luk on my own again, got off of opiads, and got stronger. From March 2019 to May I experienced some problems as expected, but nothing like before. Fast forward to a trip I Took to Destin, I quickly realized as symptoms started getting violent heat and sun was a huge trigger. Since then my symptoms have accelerated, and some are different. I know deal with painful faces spasms, mobility issues again, painful electric shocks in my neck, and shoulders, difficulty at times raising my arm, pain in wrist and fingers, vision getting blurrier, nausea, you name it it’s happening. I am still on Cymbalta, and started taking 5000 mg of CBD oil nightly. My symptoms is not being managed by the medicine anymore and I’m back to square one. Im determined to have a better quality of life, I have to! I have kids, 2 grown, 1 a sophomore, and adopted twin 5 year old boys. My kids are watching their mother fall, be in excruciating pain, and go down before their eyes. I’m visiting a new neurologist in Nevada next week, will be willing to go back to AZ, and now writing you. Whatever it takes I can’t stay like this. In my research I believe I’m dealing with something more neuromuscular. I’m running out of time. My body is getting more aggressive with the attacks. Help me please! I can barely leave my house as it’s so hot and the zingers that zap me all over. I can’t work anymore, I can’t kickbox, I can barely function as a mother or a person. My health depends on me raising my children. I’m scared for what my life is going to be. Other days it’s hard to keep going with the pain. Please help me......please. No one should have to endure this type of pain.