- CASE FILE
I suffer from chronic pancreatitis from a botched ERCP. I'm in constant pain and am in hospital often. It's hard to walk, breath and live.
ABOUT THIS CASE FILE
On Dec 13, 2005 I went in for an ERCP to see if I had stones or sludge in my common bile duct. The doctor accidentally went into my pancreatic duct and released dye into my pancreas. I had several stents in my sphincter of Oddi which offered some small relief but ultimately my new surgeon removed part of my pancreatic duct and made my sphincter permanently open.
The fallout of this mistake has been catastrophic. I went from being a tenured college math professor with a happy, full life to this faded, painful life. I lost my job, any chance of having children, my teeth, etc. I lost most of my friends and family. Now I struggle to put on my socks and eat oatmeal or applesauce. Some days I can barely walk to the bathroom. I'm alone 95% of the time, which is ok now.
I've seen so many specialists who all seem to have their own twist on things. In the end, no one knows exactly why I'm in such pain. Sometimes my lipase and amylase enzymes elevate; sometimes they don't. Some doctors don't believe I have this horrible disease but are unable to offer alternatives.
I've been on 24 different medicines but a few years ago I started getting off most. I'm on 8 daily and a few periodically now. I have an intrathecal pain pump as of Dec 11, 2013 which has helped my baseline pain and helped me get off some harmful medicines. When I'm having a flare up, I don't think it helps much at all.