- CASE FILE
For over 10 years now I’ve suffered with severe debilitating stomach pain,severe reactions from all foods. Joint pain,severe fatigue........
ABOUT THIS CASE FILE
It all started April 2007.The night I got married in Vegas. That night I said my stomach is hurting really bad I just want to go to sleep. Well about a week later we left for our honeymoon in Jamaica within two days of being there I started having severe abdominal pain, I could not eat without pain, the pain was so severe and my stomach looked like I was six months pregnant it also accompanied with severe lower back pain and nausea. Right when we got back home we went to the doctors who said go straight to the emergency room. My doctor thought I had a disease that involved the aorta that the elderly get well needless to say that wasn’t it. I was losing blood somewhere in my body and they had no idea where. I almost needed a blood transfusion. They did multiple scans and tons of testing being that I just got back from Jamaica they focused on infectious disease. I had necrotic lymph nodes they were dying off along with abscesses on my liver and my small intestine was inflamed and thickened. My white blood cell count was very high and I was severely anemic . I had multiple procedures and biopsies sent off that all came back negative. They had no idea. One doctor came in stood by the window after I just had a laparoscopic procedure and told me it was all in my head I burst into tears. So they heavily medicated me with pain meds and everything under the sun and after a week sent me home with a million follow up appointments but no answers. Months and months go by I was in and out of the hospitals and emergency rooms with no answers. Eventually they said an unconfirmed sample of one of my stools showed an unconfirmed acid fast bacillus so they put me on GI Tuberculosis medication for six months which I had a reaction too. But still took it the riphampin gave me a huge rash. I was having severe debilitating headaches and facial pain, severe joint swelling and pain, severe fatigue nausea and vomiting at times, every time I ate I got sicker with stomach pain, nausea , the fatigue was crippling so I slept 22hours a day. The pain was crippling I now use a cane to help get around. My husband ended up passing away September 21st 2011.. so on top of being disabled I was now dealing with grief. Which made my illness’s worse. It seems whenever I’m stressed I have pain and vaginal bleeding and low blood pressure along with severe fatigue. At this point I have seen over 50 plus doctors and no answers we even drove up to cedar Sinanid in Los Angeles and that gi doctor basically said there was nothing he could do every time I see a new gi doctor they have no idea and say well you could have gluten sensitivity and go with the whole probiotics stuff but it never helps and makes me worse because everything I eat or put into my body my body rejects it and I have negative reactions to food, vitamins even smelling things causes me reactions to my body. I get cystic acne , rashes and itching on my face , eczema on my hands, my hands swell and I have bad tremors on a daily basis , the doctors had me on so much pain medication that it was making my illness’s worse. So I left California and moved to Mississippi where you are unable to get OxyContin every month for your pain medication so I had no choice but to detox. At this point I had no idea how bad food was for me until I detoxed for two months got off all my medications and ate food and then I would run to the bathroom and it would all come out on top of that I would have trouble breathing and rashes would develop on my chest back and face . I got severe dandruff and cystic acne, I ended up dropping the 30lbs I had gained from all the medication I was on and realized that I can barley eat food so I did process of elimination with my food and it got to the point where all I can eat was plain chicken, olives and fries that I cooked in the microwave. It didn’t alleviate my issues but it was the only nutrition my body could semi tolerate. I then realized with the pain and severe pain attacks I would get I was unable to discontinue the pain medication completely so I started myself back ontramadol and kept my oxy and diluadid for my severe attacks. Loud noises causes me pain and light is hard too. My mother told me that as a baby I had a severe reaction to the formula and had to be on special ordered formula. Now that I sit down and think about everything I had severe stomach pain attacks when I was younger but after a day or two they would go away I thought I was hungover or had food poisoning so it didn’t alarm me much back then. I’ve had female issues ever since I was younger endometriosis cysts on my ovaries , interstitial cystitis, vulva vestibulitis, they put me on IC meds but I quit them because they didn’t help at all. I wake up in so much pain every night I can feel it in my bones and my hands and feet and legs. It’s crippling. I eat what my body rejects because if I didn’t I would wither away and die but I suffer every time I put food in my system. It’s getting worse every year to do whatever disease I have is progressing... last year it started in October every time I ate I got crippling stomach pain and sickness it got to the point where I dropped to 109lbs I was stick and bones and my spleen was inflamed the abscesses on my liver came back blood in my urine test results showed so many things were off I was severely anemic and much more... Tupelo Mississippi health care was not helping so we decided to make the two hour trip there to UAB in Alabama .. I was getting no answers .. but uab did a new test I’ve never had done before and saw the blood vessels in my stomach are not getting enough oxygen so I’m seeing a liver specialist at the end of this month hoping and praying .. around March I started to be able to eat some again and have got back to 120lbs ... I have many new symptoms problems with my breast.. breast thickening and inflammation and they sent the biopsy to Michigan doctors and they were stumped my right breast was swelling up and having severe pain and they have no idea why as the doctors still have no idea what is wrong with me ... ironic after the 6months of gi tuberculosis medication I got better and went back to work but then all of it came back about 4-6 months later and I was back in the hospital. I’m sure you hear this all the time .. my life is gone I had a great job an amazing husband I had the perfect life and my illness’s took all of it away from me. But I’m trying to live the best life I can right now even not knowing what is wrong with me..they have diagnosed me with Fibromyalgia, chronic fatigue syndrome , degenerative disc disease, tmj disease, rheumatoid arthritis, asthma, interstitial cystitis, they gave me a very loose diagnosis of Crohn’s disease but I don’t believe I have that, tear in my spine , gerd, chrostrocondritis, when I was 18 and was a server I had to go on workman’s comp because I was having severe hand and wrist swelling and pain, the doctors said all test me came back negative and they had no idea what was wrong with my hands, I get sores in my mouth after I eat and swelling , I get nasal leaking and sneezing along with headaches and body pain, my body swells , in a lot of parts of my body people can’t touch because it hurts to touch me it causes radiating pain throughout my body. I cough and get sinus infections over and over , and sometimes flu like symptoms it will feel like my throat is closing and I will have difficulty breathing . They did allergy testing in California and it showed I was allergic to a bunch of stuff but the doctor did nothing and dismissed it , they redid the testing here in Mississippi and it showed nothing so the doctor did nothing and didn’t know what was wrong with me. My body is deteriorating and I have no idea why is it truly the food causing it or a liver problem.. I just don’t know.. currently I take tramadol everyday along with a muscle relaxer, iborophen, inhaler, I have oxycondone for the severe attacks and currently pretty sick with another sinus infection. I’m having severe memory issues and it’s hard to talk with people because I see it in my mind but can’t get the words out of my mouth. And most everyday I can’t remember what I did the day before. Each year I’m getting worse and worse as the attacks are as well and still have no answers. I think if someone actually figures this out I would drop to my knees just balling my eyes out because I’ve lost so much in my life to die my unknown illness’s and I would be just be completely overwhelmed with happiness it would bring me to tears ... I’m praying y’all will be able to help me .. I’m sure I left out stuff but the way my memory is it’s hard but I do have all my records ready and willing for your expertise