- CASE FILE
I have neurofibromatosis inside my bladder. I have been told I am number 81 in the entire world reported with this.
ABOUT THIS CASE FILE
I found out at 22 that I had a bladder mass. I have visited many urologist with always no answer. No one knew what this was or wanted to touch it. I found out via Pennsylvania university that I have a bladder tumor called neurofibromatosis inside the bladder. I have been told only 81 in the people including myself have this tumor. I have done biopsy after biopsy. My last surgery was unsuccessful and caused many problems. I get constant (almost always) UTIs, kidney infections which result in hospital stays and constant pain, I’m only 28 years old.