- CASE FILE
For no reason, my body went septic in 2016 after having alot of pain. In 2018 I was diagnosed with fibro, stiff person and seizures. Why?
ABOUT THIS CASE FILE
I am a married father to five beautiful and wonderful daughters. In 2016 I started noticing pain coming from my pelvic region. Nothing too serious, but as time went on, the pain got worse and worse. It would get so bad that it would bring me to my knees. At times I would even pass out. Well one day my body froze. I checked my temp and would keep adding layers every thirty minutes. Well, it got down to 94, so I figured it was time to go to the ER. I got there and collapsed, according to records. From there they found that my white blood cell count was 4x normal. So they tested me for "third world" country diseases and put me in isolation after they stabilized me. They ran me through the onslaught of tests for the next eleven days. Still with no answers, they discharged me. For the next six months I went through the onslaught of tests again, but this time I had Nuclear scans as well. Still, no answer. I had pretty much given up, then started seeing a new doctor. She, and her staff, are freaking amazing! I love them. She started tests and got me to a Neurologist. In 2018 I was diagnosed with Fibromyalgia, Stiff Person Syndrome and many types of seizures. Yep, I've had them all. And my memory? Forget it. If it happened yesterday or before, chances are, I do not remember it. Sad, since I have my daughters and a beautiful wife to think about. My motor skills are dwindling every day. I can't remember words that people say every day. If you knew how it took took to write this, you'd think I was writing a novel. It's because my fingers don't move well and due to my involuntary movements and twitching, my fingers keep hitting other keys as I'm typing. When I walk, it feels as though I'm walking barefoot on sticks. While at the same time, my feet feel like boulders. That's when I get up. Some of the time, I can't even get up because SPS has locked my knees. I usually only have to wait a few a minutes. It takes me a week to clean a house that would have normally only a few hours. I usually feel like an idiot talking to someone, when I do go out, because I can't retrieve a word when I'm standing in front of them stammering to find the word. I really feel bad for my wife. She works all day, then has to keep watch over me at night in case I have a seizure. So she gets no sleep. Or the fact that I don't remember any conversations we have. That frustrates her even more. I'm sure there is much more to say, but honestly, I can't stay focused any longer. I can't walk or stand for too long, I'm no longer able to drive, I just want to feel some sort of normalcy in my life. The biggest thing that affects me is my seizures. I tend to have an average of 2 or 3 big ones a week of varying types. Plus, according to my EEG's, I seem to be having a couple hundred micro seizures every day. Most of these tend to feel like electricity running through my arms and fingers. At times, I get what I can only describe as an electrical explosion inside my core that radiates out. I really want to be able to do things with my girls again. Thank you so much for reading my little story. God Bless you