- CASE FILE
I’m 25. I’ve had 7 hip surgeries since 2012 with Boston & Manhattan. I was a case study, still not cured & going on 8th surgery. Numb & pain
ABOUT THIS CASE FILE
Issue started 2010 when I was 15. I was a pre professional dancer and had right hip pain. I spent two years avoiding surgery doing every alternative I could find from physical therapy, chiropractic, acupuncture, message therapy, water therapy, active release therapy, graston, cupping, 15 + cortisone shots, PRP injections, whole blood injection etc... 2012 I got accepted to the Boston Conservatory for dance but had to decline my offer and get right hip surgery. My first surgery was August 2012 with Boston Children’s Hospital, your basic hip impingement with a labrum tear. Three months after my first surgery, the capsule in my hip reopened and I needed to get open hip surgery to repair it ( December 2012) While recovering in physical therapy, my hip continued to cause me a lot of pain. The imaging showed an excessive amount of scar tissue in my hip, they also diagnosed a potential hip flexor release. They decided to do the third surgery March 2013. They removed all scar tissue and did NOT release my hip flexor. I still complained of pain in my hip, it was worse then ever. At one point they though it was psychological. Until they order my first CT scan. We found two heterotopic bone ossifications growing off the bottom of my hip w/ my rectus femoris wrapped around them. Surgery #4 April 2014 they removed the bones and released/ repaired my rectus femoris.
I then began a case study, that’s when Hospital for Special Surgery in NYC picked me up. Surgery #5 New York, decided to reconstruct my whole right hip. They also decided to release my lateral cutaneous nerve that was causing me a significant amount of pain. The reconstruction did not help but the release of the nerve did help one part of my pain. Because we cut the nerve, I am now numb on the right side of my leg.
Surgery #6 I went back to Boston Children’s Hospital and I got a Periacetabular Osteotomy which is when the cut your pelvis in three sections and put three screws in your hip. Biggest surgery I had done. This was suppose to be the surgery that fixed everything. I recovered well, but my 3 month post op appt,
In December 2016 we saw a bone growing off my illium crest. I got my 7# surgery March 2017. They ended up removing a 4.5 inch bone that had grew upward off the illium.
Things are still not better, because of all the trauma to my hip, I now have a different hip anatomy and I have a big bump on the top of the illium crest which is very uncomfortable and painful. Some doctors say it’s bone, some say it’s scar tissue but the nerves around it are damaged. I’m still in terrible pain.
Boston Children’s Hospital, was not confident in the next step. So I went back to New York City. This winter I’m schedule to get a nerve bypass from the original lateral cutaneous nervous... how ever I’m put in a tough position now where I need to decided whether or not to go through with the surgery. New York City is out of network for our insurance, so financially its very difficult.
I turn 26 next March, and a lot of my post op appts would by pass my birthday and at that point I’ll be off my parents insurance as of March 2nd.
I’m writing out to you because this has affected my life and my family’s life in so many ways. I dedicated my whole life to dance, I fought and fought to get back and the doctors finally had me stop dancing at the age of 20. I’m now a personal trainer and stay in the best shape I can but limited to a lot. I can’t sit for long period of time. I can’t stand/ walk for long periods. I can’t run or jump. I can’t squat. I’m 25 years old and I feel that these limitations should not be, I’m to young not to be able to run or jump. This experience has affected me physically and mentally, however. I would not be who I am today if I didn’t go through this. It’s very frustrating because I’ve been working with the best doctors/ surgeons in the country and nobody can figure out what’s wrong or how to fix it. I won’t give up though!