- CASE FILE
Since I turned 11 I have been passing out while on my period. I also have WPW and a vagal nerve disorder, diagnised in my 20's. I am 36.
ABOUT THIS CASE FILE
I had a laparoscopic abdominal exploratory surgery in 2016 to determine the cause of my Dysmennorhea I have been experiencing almost every month since I turned 11 and started having periods. No cause was found, so my nerves to my uterus and ovaries were cut. I was told they would likely grow back within 1-3 years. I was symptom-free for 1 year exactly following my surgery. For the past 1.5 years I have had slowly returning symptoms including the typical fainting episodes and severe Dysmennorhea. When I turned 19 I also started experiencing symptoms of what was much later diagnosed as a vagal nerve disorder: when my heart rate rises, my blood pressure drops. Furthermore, during my pre-op exam in 2016, Wolf Parkinson White syndrome showed up on an EKG, which I do have symptoms of from time to time, especially during exercise or if I ingest caffeine or any other substances that would artificially increase my heartrate such as cold medicine. Most life-saving drugs would do the opposite of what they are supposed to do for me, or would cause severe, life threatening consequences. Sometimes cardiac arrhythmias occur as a result of my WPW, especially when I ingest substances that increase my heart rate (caffeine, medicines, and also general exercise). I have learned to control my heart rate in order to accomodate my active lifestyle (I used to run/jog almost every day to relieve stress). I recently was diagnosed with an old whiplash injury by a chiropractor and was explained that my neck is locked/stuck at the bottom and also at a small area near the top, and believes this may be contributing to my vagal nerve symptoms. I have been told that I have an overactive vagal nerve and wonder if I should consider an ablasion procedure to burn out potential extra nerve endings in my heart. I wonder how that procedure may affect my reproductive health issues for the better or worse. I often have dizziness/light-headed events in which I am not able to work, sometimes seemingly for no reason and sometimes every day for up to 2 months. This affects my financial situation in more than one way: It costs a lot of money to go to doctors and often times they are unable to help. I get paid less when I don't work- I ran out of PTO in August and I have 100 hours per year and have only taken 40 hours for an actual vacation. Working less means I struggle to afford the basic cost of living needs and housing costs. I am also a very hard worker and strive to have an active lifestyle outdoors, but I become light headed and dizzy for such long periods of time (sometimes 1 week or 1.5 months) that I cannot live my life the way I aspire to all the time. It deems me unreliable at work and I am sometimes couch or bed-ridden for days at a time to prevent myself from passing out. No doctor has been able to help me except for that 1 glorious symptom-free year. I have changed my diet to vegetarian/whole foods/not processed (I also eat seafood) and avoid soy as much as I can as per recommended by my gynecologist as to not cause inflammation in my body or to cause any reproductive issues (ie. the regrowth of ovarian cysts or other benign polyps found in my uterus). I take B12. I eat some dairy products. I am currently undergoing chiropractic adjustments 2x per week and do my best to avoid disturbing my vagal nerve in any way possible (ie. Not going outside in the heat, controlling my exercise/heart rate, etc.) I am seeking help because I have long been deemed a medical mystery and recently have realized the impact of what it means to be afflicted. I want to live my life actively and make a difference in the world through my career, but I am reliant on my employer to tolerate my medical issues and absences. It affects my life more than the ones closest to me realize at times, especially in my premature years, and my family has recently finally accepted that I have serious health issues after 20+ years of suffering. I am single and would love to have a family of my own, but do not want to pass along a hereditary disorder if I have one and also worry about becoming pregnant and how it would affect my vagal nerve disorder. Any pressure on my stomach causes almost immediate symptoms of nausea, discomfort, dizziness, etc. I also worry about a potential significant other in the future and the burden it would put on their life to be with someone affected by multiple health disorders in multiple ways.