- CASE FILE
Debilitating undiagnosed Autonomic Disease Severe Chronic Bilateral Autonomic Failure worsening , Idiopathic progressive polyneuropathy
ABOUT THIS CASE FILE
Dysautonomia, Vertigo, Dizziness, Pre-Syncope, severe 24/7 migraines, abdominal pain that feels like tightening in my intestines, severe constipation, cannot fully evacuate, slow transit and motility, Severe Chronic Bilateral Autonomic Failure worsening, Idiopathic progressive polyneuropathy, Vasal vagal responses, severe pain in abdomen, severe head pain that travels across temples to back of neck, neck pain, shoulder pain , upper arm pain, weakness, fatigue, insomnia, Orthostatic Hypotension, Small Fiber Neuropathy, Severe Hypersensitivity to most medications, Hashimoto's , Hypothyroidism, Bruxism that I wear a night guard for, Worst debilitating symptoms are in my intestines and head. symptoms have now become acute and totally debilitating. I can't even walk without assistance because of severe dizziness and head pain 24/7 now. blood pressure fluctuations. severe Sensory sensitivities , shortness of breath. I have seen specialists in Boston, MA and Yale New Haven. Mostly Neurologists, Rheumatologist, Cardiologist, Mast Cell Doctor. They all agreed I have some kind of rare condition/disease. I've tried motility medications and many other types of headache medications. Most all medications cause me to have Vertigo and almost pass out after taking them except for my thyroid medication. I take very small doses of Ativan to try and stop the Vertigo. I take lots of Miralax daily in order to go to the bathroom. Illness slowly began in 2012. Has progressed to a grave condition now. I am fighting for my life now. PLEASE HELP ME. I'm a Caucasian 62 year old female. losing weight now rapidly.