- CASE FILE
Hello,I'm 39 and was just diagnosed with Chiari Malformation. What I've found is that their isnt much research or studies on this.
ABOUT THIS CASE FILE
Hello,I have been recently diagnosed with Chiari Malformation. I've been really sick where I cant cough, sneeze or bend down without my head feeling like its gonna explode. I'm constantly fatigued. I get head aches every day and when I do my vison in my right eye gets blurry and I cant see. My right side of my body acts like it cant move and in getting much weaker with my body especially my right side. I was very active until all this started coming on. I'm a ml other of 5 kids who have been suffering with me with my medical condition. Doctors dont have much information as this isnt studies or researched. The doctors want to do decompression surgery to help with some of the side effects but that doesn't guarantee that all my symptoms will go away. I'm 39 but feel like I'm 70. This has been very scary to not have any concrete answers even after having a ton of test done. I'm not only seeking out for help for me but for others with this condition. I've met a ton of people through facebook that also want answers as its effecting everyday life. I'm hoping that you guys can help find a cure or something that can help people suffering from this malformation. It needs to be brought to doctors attention si they can treat people with this. Kids are born everyday with this malformation and if we had a cure or some options it would save a lot of people from having to life a life like this. Their isnt enough research to prove its hereditary, but I feel myself that it is because people in the same family have this issue. Chiari malformation has levels and if not treated people can die.