- CASE FILE
I have been in and out of hospitals since 2016 when a common surgery turned into back to back rare medical condition.
ABOUT THIS CASE FILE
In 2016 I had surgery for a prolapsed bladder, rectocyle, cyctacyle and vaginal repair. My life changed the moment I awoke from that surgery. Sitting was impossible. Walking was difficult as it felt like something was going to fall out of my vagina. It constantly felt like someone was taking a razor blade and slicing up my vagina. I had always had issues with constipation but now I just stopped having BM’s even with being prescribed with large amounts of laxatives. I was constantly in the hospital baffling Dr’s. They cut my spincter, removed my sigmoid colon, removed the support stitches from the mesh sling that held my bladder in place. In February 2017 I was told I had pudendal neuralgia, a very rare medical condition. I had to travel to another state for treatment as so few Dr in the USA even knew what this condition was. I have had 2 CT guided pudendal nerve blocks with pulse radio frequency ablation that only gave me relief for a few months. During this time my bowels stopped working again and the Dr in my state made me feel as if it were all in my head as they had no answers as to why I could not go to the bathroom. Again I had to travel outside of my state to another hospital where after many tests I was diagnosed with another rare condition called colonic inertia. My large colon was completely paralyzed and would have to be removed. It was removed in July 2018. I am still suffering with either constipation, not being able to empty my bowels all the way, and constant stomach pain. I still have constant vaginal stabbing. I have hospitalized for c-diff in my small intestine which the Dr’s day is unheard of as you can only get this in your large colon and I know longer have one. I go through periods where if I so much as touch my face it bruises. Sometimes my body feels like it’s burning from the inside out. There are times my hands and legs turn blue but know one is able to find the reason or cause. I frequent the ER a lot when the pain in becomes to much to handle. I can’t take opioids as it stops my bowels all together. When I become ill I have to suffer through it as antibiotics are dangerous for me as I have had c-diff twice and each case was brought on by antibiotics. I see many Dr’s from 3 different states and most of the time I need someone to drive me as I can’t sit flat. Each Dr says I am a very complex case.