- CASE FILE
I have CIU chronic idiopathic urticaria, chronic hives. this time I have had them for 15 mos. everyday all day long itchy hives. NO sleep.
ABOUT THIS CASE FILE
All day long everyday hives. I also keep getting shingles. So the hives go to my body I am having trouble with and make the problem worst. On line their are a couple websites that have lots of people mostly woman who have this unexplained illness. There are lots of us out there looking for a cure. The only thing that helps a little is a shot called xolair which I was on for 11 mos which helped keep the hives away. I had to go off of it because all my joints and kidneys stated to hurt. They also using methotrexate to cover up the symptoms. None of these medicines are cures they just cover up the symptoms. We also get angioedema(swelling of the hands feet and face) from all the allergy medicine we take. It is hard to keep a job or go out because you never know if you are going to be well enough to go. I have seen an acupuncturist, chiropractor, 2 natural path doctors, endocrinologist, rheumatologist, about 9 regular doctors. Most of all of us that got this disease back for a second time can not get rid of it. No sleep at night due to the hives coming back full force at night. Before I went online and saw all the people who have this disease, I thought the reason why they do not know how you get this disease or how to treat it was that not many people had this. There are so many people suffering from this disease and no one is doing anything to help us. It is so hard to live like this. Most of the days you do not want to leave your house. I start to panic when it is turn night time out because I know the hives are coming back and I will not be sleeping and I will be very itchy. PLEASE HELP