- CASE FILE
Want to know what I "really" have and not what someone "thinks" I have.
ABOUT THIS CASE FILE
In August 2015 I found out I was pregnant. Come September I was told I was having an ectopic pregnancy and under went a D&C and laprascopic surgery with right tube removal. After my surgery I developed a reaction to glue they used on the incisions and developed ring worm. I was treated properly, so I thought. Then on October 31st everything took a turn for the worst. My body overcame with a rash that covered my me from head to toe. Just tiny little red dots all over and they itched like crazy. At first I thought I was allergic to this new necklace I got and worn that day but the rash didnt seem to go away. I went to my doctor at the time and she tested me for all the basic stuff like pet dander, dust, household stuff, etc. Tested me for STDs, whatever she could test me for she did and everything came back negative and in her exact words she said "I give up." From then I spent many days and nights in and out of the hospital. Trying everything I possibly could think of. Come Novemeber I basically lost all use of my hands and feet. I couldn't walk so I had to crawl. I couldn't get dressed by myself, couldn't eat or shower by myself. Couldn't open doors, couldn't even sit or get on the bed, basically couldn't do anything. My body was in so much pain all of a sudden, that I would just cry all day every day. Come 2016 I finally found another doctor started all over with the testing, again everything was negative. I waited 3 months to see this Rheumatologist due to the insurance I had and honestly the rudest person ever and a waste of time. He did his tests and told me that I tested positive AND negative for Lupus but didn't feel the need to treat me. After that I never saw him again. I found another doctor, she told me nothing was wrong with me and I was making it up. Found another doctor in Sept/Oct 2016 and she ended up being it for me for awhile at least. I saw her a few times, she did all her tests and ended up draining my knees one day and the fluid came out yellow (not sure if that's normal) but had it tested and it came back positive for Pseudomonas Aeruginosa. I was sent immediately to see an Infectious Disease doctor to be treated. After I saw that doctor which was in December I was given a picc line and started antibiotics every 12 hours for the next 6 weeks. I had to have knee surgery on both knees because the fluid kept coming back so on Jan. 2nd, 2017 I had the knee surgery on both knees. Still having the picc line, I became extremely ill. I had fever, chills, vomiting, couldn't keep anything down. Jan 16th, 2017 when the nurse was over she had to report my illness to the doctor and was told to go straight to the hospital. I went and they sent me home. On Jan 20th, I went back to the hospital where this time they finally decided to keep me. I got worse from there. I was told I had pneumonia and had to have chest tubes put in. Then the next few days I couldn't breathe anymore. I was on the highest amount of oxygen you can have. I remember going in for a test and coming back out in more pain than before. Then they told me they had to put me in a coma because my body was not responding to any of the medicine. I was out for 4-5 days. When I woke up, I had trouble with my heart. My heart rate would go all the way up to 250. Had tests and nothing. No answers as to why. I ended up having my gallbladder removed on Valentines Day, they say that's what was causing me to vomit but I dont believe that. I was in the hospital a day shy of a month and no real answer as to why. I was told sepsis, contaminated picc line, gallbladder but nothing 100% sure. After I got out i seem to have gotten better. It's now August 2019 and still having problems, not like I did but I still get them. When I flare, it puts me in the ER it's so bad. I've been seeing the rheumatologist I had from the hospital and First she said i had lupus now they are saying they "think" I have Adult Onset Still's Disease. I'm tired of hearing they think, I need to KNOW what I have.