- CASE FILE
Please help me. I’ve seen so many doctors and everyone seems to have different opinions on what is going on with me. It’s been 10 years!
ABOUT THIS CASE FILE
I am seeking help because I am currently 25 years old, this started 10 years ago at the age of 15 and during these past 10 years it has consumed my life and I have gotten nowhere. I have seen over 50 different doctors and specialists, all with completely different opinions. It started when I would randomly “blackout”.. I’m still not sure what it actually is, that’s just what I call it. It’s where I’m unable to hear or see, it lasts anywhere from 15 seconds up to 1min and 1/2. Afterwards, I’m severely dizzy, weak, and confused.These now happen up to 6-7 times a day. They found a brain tumor that they believe to be benign, since it has not grown in 10 years. It’s in the center of my brain stem. I was diagnosed with multiple sclerosis at the age of 17, even though my spinal tap had only one band. He then undiagnosed me a few years later, after infusion steroid treatments every month for years and 100lbs later because of them. I was told I had POTS syndrome, but then undiagnosed from that later on because my blood pressure remained stable during the tilt table test, even though my heart rate dropped drastically. I have facial spasms, which range from minor to severe, where they actually hurt my face muscles. And because I still don’t have any diagnosis, I am unable to maintain a job and have any life worth living. Ive been called a liar by one doctor, and my family is frustrated, as well as I.