- CASE FILE
21 year old college student who is suffering from chronic fatigue and pain for the last two years and my doctors can't figure out why
ABOUT THIS CASE FILE
I was somewhat healthy throughout my childhood. When I was about three months old, I had RSV and I easily got sick which makes me have this deep hoarse cough that takes months to get rid of. I've had a few concussions from falling off horses but nothing serious. When I started college in Fall of 2016, I had gotten UTI's for the first time about every month and Strep Throat for the first time about 4/5 times that year and the flu a few times that year. My UTI's are still very frequent and sometimes contains blood but I've learned to catch it early and drink a lot more. In the month of September 2017, I started getting a throbbing pain in my right pinky finger whenever I rode my horse. In October, it crossed over my ring finger and hasn't moved since. I've gotten nerve tests which came back negative suggested by my orthopedic. October/November I started getting really bad pain throughout my entire right arm, up to my shoulder, which affects my sleep. Come to the beginning of December, I started losing my sense of smell, which led me to the Taste and Smell Clinic in Pennsylvania, in which they told me I lost about 85% of my smell, they don't know why and they don't know if I'll get it back. I also started getting constant chest pain and shortness of breath in December when I went on vacation. I saw my first cardiologist who gave me an echo-cardiogram at rest and didn't find anything. She sent me to a pulmonologist who did a pulmonary cardio stress test, which concluded that there was nothing with my lungs but my cardiac functional capacity is moderately decreased (53% predicted Vo2 max). I saw the cardiologist who performed that test and we did the RHC with exercise but my body couldn't handle it and I was unable to complete in. I left my school in January 2018 so I can go home and see doctors to try to figure out what is wrong with me. I've seen many neurologist who thought my crossed finger was a condition called focal dystonia. The only problem with that, is that it started happening to my left pinky finger too and they weren't sure what was causing it. I saw a neuro chiropractor who discovered that my eyes don't follow in a smooth glide when I follow with my eyes and my eyes blink way more than suppose to. I've realized when I try to focus on something, my blinking will get worse. I've also started getting carsickness, doesn't matter how long I'm in the car and it doesn't matter if I drive or if I'm a passenger. I get night sweats when I sleep or when I take naps. My feet and hands are always cold, they sometimes get numb and change colors. I bruise easily and theres always a bruise somewhere on my body. My neck is always stiff and I'm constantly cracking it. I'm always tired, no matter how much I sleep. At night, my pain keeps me up and I toss and turn all night and will take naps for hours during the day. I saw a neuroimmune doctor who came up with CFS/ME, autonomic dysfunction and POTS (postural orthostatic tachycardia syndrome). With her suggestion, I'm wearing compressions and taking a lot of vitamins such as; Vitamin C, Vitamin D, Vitamin B, Coconut Charcoal, Magnesium, Omega3, COQ10, Milk Thistle and some medicine such as; Fludrocortisone 0.1mg and Natrexone 4.5mg. I've seen so many doctors such as; rheumatologist, pulmonologist, two orthopedics, three neurologists, chiropractic neurologist, neuro-immune, infectious diseases, geneticist, three cardiologist, urologist, allergist immunologist, my physician, neuro-ophthalmology, asthma and allergist and osteopathic. I tried physical therapy, shoulder braces, CBD oil and pills but felt to relief. Now I'm a 21 almost 22 year old college student who just wants her life back. I want to be able to go out with friends and go on adventures without being in constant pain and without being tired. I want to wake up in the morning feeling refreshed and not force myself to get up because all I want is to go back to sleep. I was a competitive equestrian who would ride five and more horses a day and now I barely have the energy to even ride one. My college is a horse college and I love it but it's too much on my body so I decided to transfer to a different college and change majors to something that'll be easier for me.