- CASE FILE
Chronic all over Pain, Back pain, and Headaches for nearly 10 years.
ABOUT THIS CASE FILE
I have been living with chronic pain for nearly 10 years of my life. It began when I was in high school where I started having painful headaches in the back of my head at the base of my skull, nausea, fainting, and increasing frequency in heart palpitations that I use to have very rarely through out my life. I went to college and things began to progress to where I missed more and more school from nausea and headaches and began to have soreness all over my body. I ended up dropping out in my 3rd year in order to try online schooling instead and I worked in a small diner for about a year and a half until I was so sick at work that my boss told me I had to get a handle on this. I attempted several other jobs but it ended up the same and I had to quit and continue looking for answers. So began my many trips to the doctor when I was around 22. I am now 30. As the years went on the pain in my body worsened starting with my legs. My knees are so sensitive that I can not be on them on the floor without sharp pain. I must use a pillow to do so like if I need to find a pet toy under furniture and I have stopped getting in a bathtub for fear I can not get out. My left leg is not as painful as my right. It is fairly normal besides my knee pain. In both feet though I have burning to where I cant wear shoes any more that lace or cover the top of my foot. It hurts so bad like the pressure just from the top of my shoes hurts me. So does if I'm in bed and covers are on them. I usually keep my feet uncovered now to prevent the burning. My right leg is so painful all the way along it I limp walking and sometimes it has weakness and will give out entirely. I had to be prescribed a walker from my neurologist to help me for longer periods on my feet so I dont fall. I began having really bad back pain next starting in my lower back. I have what my doctor calls a paraspinal mass almost on top of my si joint area that is rather large. No matter how much I have complained of pain and swelling there, it has been ignored. An ultrasound did not show anything but you can clearly feel it at all times. My lower back in general has facet arthropathy that I'm told shouldnt be that bad yet but now I can no longer bend forward at the waist without being in excruciating agony or being unable to stand or sit for more than 30 minutes at a time without hurting. I have to lay down a lot just to get some relief. I have been to physical therapy twice and I'm going to be going for a 3rd time soon. It did not help much the last 2 times and I have continued to do the exercises I have learned. I have had spinal injections in my spine and though they helped a very small amount, it did not take long before pain was in full force again. Now pain has spread to my arms and further up my spine. I use to be an artist. I can no longer draw. Holding a pen to even fill out forms hurts my hands so bad. My elbows I can not even rest them on arm rests without pain and my fingers and hands going numb. I have no medication to help because I'm allergic to all NSAIDs or at least had anaphylaxis the times they tried to give me different ones, and anything else doesnt touch the pain. Pressing literally anywhere on my body will cause it to throb too. I had to get a different mattress just to sleep because spring ones caused too much pain. Even with the foam mattress I rarely get proper sleep. I also have these strange types of hot flashes where I know it isnt hot where I am but I will end up basically sweating through my clothes and have to take a cold shower to cool off and get it all off. Then there are the headaches in the back of my head at the base of my skull where it meets the spine. These are so excruciating like an ice pick being rammed into my skull over and over. Sitting up or standing will make it an even worse intense pain. Burning radiates up and toward my eyes where I have to be in the dark. I'm usually very nauseous during it too but I rarely throw up any more because I'm so use to it. Pain is so intense for this I have cried and ended up in the ER multiple times where they do a CAT scan and nothing shows up for them. It happens usually for 4 days about every 2 weeks and I end up trying to sleep it all off because no medication has helped yet that I've been on for migraines. My specialist does not believe they are migraines and instead has called them cervicogenic headaches. I become so sensitive to light, sound, and smell during them though I am slightly more sensitive anyway. I have had MRIs of my entire spine and head. All those found was I have a blood vessel lesion which I was told wasnt concerning, the facet arthropathy in the lumbar of my spine, a small syrinx, some scoliosis, and bulging discs between all the vertebrae in my neck but one but nothing has been done over any of that. An EMG in my right leg did not find anything wrong. The only thing that has gotten better is some stuff with my heart which I had irregular heartbeat with heart palpitations and fainting often until I was on medication. For the most part that all has stopped with it only happening a few times. Because of all the pain I ended up getting functional neurological disorder that gave me no epileptic seizures. I already had past trauma as a child where I was born with an ulcer in my small intestines which at the time they didnt know could exist. I spent the entire first 7 years of my life vomiting unable to eat many foods, underweight, on experimental medications, and constantly at doctors until finally a knew one had done his thesis on ulcers and they found it when I was 7. All that suffering and it only took 2 months to fix. Basically my problems now have reminded me of all that back then. I've had to get emdr therapy to help and aee a therapist for my major depression and anxiety but there still is so much pain can hardly do anything. If even this can not be cured, I keep hoping for a full diagnosis and possibly relief from pain. My current medications are effexor extended release daily, metoprol daily, zofran as needed, and I have to take vitamin d3 because I keep being deficient in it. I am also scheduled to have an occipital nerve block in October 2019. I've never had genetics tested, had any surgeries, or been able to see a rheumatologist because I was told it would take over 2 years to see one since there are so few where I live supposedly and they are booked that far. My neurologists wanted to all send me to Mayo clinic in Arizona but they would not take my Medicaid. Then tried a brain institute in Texas. I had the same problem there. Those places wouldnt take me so I've just been in limbo hoping for something.