- CASE FILE
16 year old boy with severe diaphragm spasms, back pain, shooting leg pain for 9 months with no diagnosis or cure in sight
ABOUT THIS CASE FILE
Last November during football practice, my son was walking away from a play, and another player rammed him from behind with his head in his helmet hitting my son in the right lower back (rib area) lifting him off the ground and causing him to land face down smashing his head on the ground. The force was so violent that my son's helmet came off. He had felt a pop in that area followed by severe pain in his back so we went to the walk in and a scan of the back showed soft tissue swelling but not much else. They told him to ice it and relax and gave him Ibuprofen 800 and sent him on his way. Later that night, he began experiencing what looked like extreme uncontrolled diaphragm spasms. It looks like he is doing constant crunches. His stomach tightens up so hard that it causes mild to severe back pain, abdominal pain, shortness of breath and chest pain. All day every day my son has these spasms. We have seen several Neurologists, Cardiologist, chiropractic care, massage, as well as acupuncture/dry needling. He has been to the ER several times, as well as staying in the hospital for several days at a time. He has had an MRI, EKC, cardiac stress test, worn a holter moniter, Ultrasounds, CT scan of the abdomen as well as a diaphragm fluoroscopy in order to give this the proper diagnosis, and to stop these spasms once and for all so he can go on with his life. He has been given several different pain meds, anti seizure meds, to try to control the spasms, and nothing has worked. He has been told he has segmented spinal myoclonus, diaphragm spasms, diagram flutter, and post concussive syndrome, and the team of docs have said they are not sure if this is coming from the spinal nerves or directly from the diaphragm itself. Therefore they have no idea how long he will continue to have these spasms or if they will ever go away or if they will just continue to get worse. They said they ruled out phrenic nerve damage. As of today, the flouroscopy has shown that his diapghram moves separately and they don't know why or what to do to fix it. His first MRI in December showed too much artifact and ghosting because he was jumping all over the table. The report suggested to repeat if patient was still having symptoms. They finally repeated the MRI four days ago, after pleading with his Dr. to do so, it now shows that he has T5-6 and T6-7 disc protrusion. On 8/22/2019 he felt a pop in the same place he was originally hit last November and has had severe pain, pins and needles and shooting pain down his right leg with each step coming from the area in his back down to his foot when he puts any weight on his heel. If he puts minimal pressure on his toe on the right side, it isn't as bad. His thigh and calf are now tight like her is making a muscle, and won't release. From this ER visit, the Dr. prescribed morphine and Valium for a couple of days, (this seems to be the quick fix) and then we go back into the office to see Neuro on 8/27/19 because they can't fit him in sooner only to go back to square one. His medications at the moment are Clobazam twice daily and amitriptiline every night. Lidocaine patches as needed. Nobody seems to know where what nerve is firing from where and how to fix it. The last phone call from his Neurologist we have been told to consult pulmonology a call because maybe something was dislodged in the lung and maybe that is the reason for his spasms! Or maybe Gastroenterology because maybe it is a hiatel hernia causing his spasms and pain in his back and leg. We have been dealing with this since November 14, 2018 and we are desperate for a cure. It is heart breaking watching him suffer and hurt everyday and night. And yes, unfortunately he spasms in his sleep too.