- CASE FILE
I have seen dozens of specialist with no answer to why my body is attacking itself. I have had multiple surgeries in the last three years.
ABOUT THIS CASE FILE
I am contacting chasing the cure because I am lost at what to do anymore. I have seen every medical professional there is. I am in debt because of extensive hospital admissions. I had abnormal liver enzymes for the last 10 years with no one knowing what is was. I agreed to do a liver biopsy in sept of 2016 and my bile duct was knocked. I became septic and put into a drug induced coma for almost a month. I was in dialysis. I had blood clots and chest tubes, I had a Trach put in and a feeding tube. My family agreed to an surgery ERCP. They opened me up and I had 6.1 liters of bile in my abdomen. The ercp was cancelled because they had to remove all the dead tissue and 3 feet of my colon had to be removed. They had to put a cholostomy and my massive wound of my abdomin to be left open. Since the coma 2.5 years I had to learn how to walk and talk and eat normal. It took a year before I could have extensive abdominal reconstructive surgery and reversal of the cholostomy. I have had severe dizziness, severe diarrhea still that take three ,Ed’s to control and one of them tincture of opium. I now have psychosis due to the coma and severe short term memory loss, severe abdominal pain, continued high liver enzymes which are normal know from a successful ERCP. I unfortunately have severe diarrhea still, and a prisoner in my home. I can sometimes have 10 plus dizzy spells a day even though I now have high blood pressure . I have had abnormal labs which look like I have a autoimmune disorder and I have been tested for everything and it comes back normal, but my symptoms act like it is an autoimmune disorder. Now I have severe headaches and migraines. My emotions are so unstable since the coma, I get upset so much easier now. I lost my job that I loved and on disability, we are financially in debt and will have to file for bankruptcy. I am desperate for an answer and I know there has to be one out there. I take a boatload of meds, I’ve done speech therapy for my memory/acquired brain injury, I have had neuropsychology testing. I’ve seen the eye doctor twice because I get severe blurring vision and double vision at night. I have these episodes where I start sweating and shaking, and then I have to go to sleep. I will experience severe head pain and abdominal pain. I have had every lab done by and immunologist 10 years ago I have had positive ANA and then negative ones. Then I will have a high C-reactive protein and two weeks later it’s normal. I have had over 7 surgeries in the last 3 years since that one biopsy. I’m nit here to say oh someone made a mistake I’m here begging for an answer so I can have my life back. I was avid outdoorsman and fisherman and loved camping. I am not able to do anything very physical for very king and can’t do the things I love to do. My husband has been by my side this whole time and I feel so bad I put us in debt. I also had to have all my teeth removed because I woke up from coma and the gum disease I was fighting off before the coma increased and my teeth were rotting at a fast rate. I have dentures now.