- CASE FILE
My strength and health has significantly decreased over the last 2 years. Widespread joint pain and muscle weakness. Severe gi/gyn issues.
ABOUT THIS CASE FILE
I have always been active and energetic. In high school and college I was in dance and gymnastics. Until about a year and a half ago I was performing and teaching burlesque 2-3 times a week on top of working as a special needs caregiver and in school. I have had increasing gi issues since being hospitalized in 2013 for Cdiff. I have slowly restricted my diet, as more and more things seem to bother my stomach. My diet is currently all major allergen free, vegan, caffeine free, don't smoke don't drink. I'm starting to only be able to eat a few bites at a time before feeling completely full or nauseous, if I happen to have an appetite at all that day. I've gone weeks without eating when the bloating and constipation was so bad. It's to the point where regardless of what it is im eating I'm going to feel nauseous and bloated or severe acid reflux. I often feel so nauseous that I feel like I need to throw up but I'm unable to. I'm on the highest doses of all the nausea meds. Probiotic. Protonix. In August 2018 I had to completely stop working due to lack of energy and strength. I've had several episodes where my muscles just stopped working and I couldn't move. I could hear what was happening but not open my eyes or move. About a year ago I started having widespread joint pain that has gotten incredibly worse over time. Recently my right shoulder hip and knee have been sliding around and popping in and out of socket. It's to the point that I can barely even use my cane because my arm is too weak and holding my phone shoots pain into my shoulder where my arm connects to my shoulder. I have been getting more and more drowsy lately and finding it hard to stay awake most days regardless of how long I slept or how long ago I woke up. That is if I'm able to sleep at all. I generally fall asleep for a little while then wake up in pain about every few hours and sometimes stay awake for hours. I have been diagnosed with gastroparesis and fibromyalgia. I also have severe debilitating pelvic pain that is cyclical and happens on the same days entry month regardless if I'm menstruating or not. My fatigue and other symptoms tend to follow this cycle as well. I had a laproscopy last year that found some scaring but no endometriosis. The doctor went back and forth about 3 times at different appts on whether or not I have endometriosis. Including one time she bombarded me in my room where I was alone with a herd of emt men and forced me to go to the psych ER for literally no reason bc I was upset she wasn't giving me a straight answer or trying to figure out what was actually going on. I haven't been able to obtain any kind of answer or diagnoses regarding pelvic and menstrual pain. Severe nausea also accompanies said pain and lasts for a couple of days. My periods have gotten increasingly lighter with pain and symptoms increasing. I have seen several GIs, GYNs, rheumatologist, cardiologist, neurologist chiropractor etc and none can seem to agree on anything even with themselves and go back and forth on diagnoses. I'm on 15+ prescriptions and supplements a day none of which seem to help with anything significantly enough to notice. I have govt Healthcare so basically this means I spend weeks being ignored by doctors who accept personal phone calls in the middle of appts, show up to the office 30 minutes after I arrive and mansplain to me something I've already been diagnosed with that I'm saying I no longer fully agree with. I've been physically mishandled by hospital staff as well as being verbally abused while in the middle of having a panick attack and refused tests and services that were pertinent to my health at the time. I just spent 8 days in the hospital for nonepileptic seizures and significant right side weakness. I was able to normalize enough to leave but wasn't given many answers or solutions. I am looking into testing for ehlers danlos syndrome but I can't get a single doctor to listen to me or take me seriously and give me the testing I need. I want to stop feeling like a burden and like I'm too much and not enough simultaneously. I just want an answer and for someone to try and to actually care.