- CASE FILE
In an instant my life made a drastic 180. I got sick on vacation and ever since then I have had three brain surgeries and much more.
ABOUT THIS CASE FILE
I have been battling medical mysteries for 2.5 years now. I have met with countless doctors, some considered the best in their field. Just to be turned away and even laughed at being told my symptoms are just “due to being a stressed out woman and mom”. I have had a constant headache for 2.5 years accompanied by tinnitus, hearing loss, limb numbness, dry mouth, and so many other symptoms no one has been able to piece together. I have been diagnosed with vascular Eagles syndrome and have had two styloidectemys and my C1 vertebrae shaved to release pressure on my jugular veins. I also have been diagnosed with “connective tissue disease” by a very confused rheumatologist who rarely sees me even though I have a definitive diagnosis of antiphospholipid syndrome which is when the blood clots very easily. She placed this all in the hands of my primary care. I have had two brain stents put in due to clots and stenosis of transverse sinus. I am frustrated beyond belief and am constantly battling just to be treated correctly and fairly. I want my life back. I want to be a happy healthy mom again to my three little girls. 2.5 years ago I was this and in an instant it all changed. I just want to know why and what and how!!