- CASE FILE
I was born with Hydrocephalus and have Chronic debilitating Chronic headaches. I also have a Cavernoma on my brainstem and a cognitive dis.
ABOUT THIS CASE FILE
I have had hydrocephalus since I was in the womb. I had my first shunt put in when I was two weeks old. I have had headaches since I can remember and they have always kept me from living a normal life. In 2011 when I was in the hospital for severe headaches my doctors discovered a Cavernoma on my brain stem that they said they can't operate on because of the location of the Cavernoma. I have had shunt revisions in 2014, 2015 and went in for an ETV surgery in 2016 to try to help alleviate the daily pain from the headaches I was having. After I had the ETV surgery I had two seizures and found out that I had a Staph infection in my Cerebral spinal fluid. They had to do a second operation, remove my shunt and give me antibiotics directly in my brain. Some of my organs became enlarged because of the infection and still give me a lot of pain today. I left the hospital after a month and haven't been the same. Before I went into the Hospital I averaged about a 5 for headaches on a scale of 1-10 and now I average a 7. I used to work 40-60 hours a week and now I can only work 15-20 because of the pain and I have to work from home. I get extremely tired easily, my memory is awful and my pain is unbearable. The Doctors in Florida and Boston have not been able to help me and I am in a great deal of pain. It is affecting my life with my wife and my little girl. Please help me out! Thank you.