- CASE FILE
I'm 28 and have had chronic fatigue since 2009. Then at the end of 2014 everything got worse, and I started experiencing chronic pain.
ABOUT THIS CASE FILE
Everything started with chronic fatigue, then neck pain, then wide spread body pain. Always had a slightly higher heart rate. Eventually my pain was so bad I couldn't work full time. And my heart rate would go up to 120-140 just getting out bed at night to go to the bathroom would feel like running a marathon. After 4 years of this it got so bad I was not able to get out of the house much. Saw many doctors of all types of specialties. Tried chiropractors, acupuncturist, massage therapists, naturopaths, rheumatologists, neurologists, gastroenterologist, physical therapists...etc...At the beginning of 2018 I went to a functional pain clinic, started Low dose Naltrexone and thyroid meds. After 3-6months of starting these two medications I got some improvements with my PEM and pain flares. Since I got some improvements I was able to go back to part time work and eventually worked my endurance up to work full-time. But I'm still dealing with chronic pain and fatigue, it's just not as intense as before. My migraines became constant and I have had a chronic headache for over a year now. I recently started Emgality, which might be helping reduce the intensity but still onset headache upon standing. I get weird sensations in the back of my throat when I turn my head too far and some of my symptoms get worse when my neck hurts more or is turned at times. Also ever since I weened off Cymbalta in 2017 I've been having INTENSE muscle spasms/jerks at night when I'm laying down trying to sleep. They're so intense my bf has commented it looks like weird seizures. I'm fully awake and aware when they happen. I've been diagnosed with Fibromyalgia, Chronic fatigue syndrome, myofascial pain syndrome, P.O.T.S., hashimotos, EDS type 3 hyper mobility, migraines, intermittent exotropia, MTHFR... I've been trying to find a doctor to let me get a flexion extension MRI or CT scan... To look at the possibility of cranioservical instability. The very intense muscle spasms that happen every night when I'm trying to go to sleep, sometimes happen during the day when trying to relax. I'm trying to rule out Myoclonus for this. Also this year I went Gluten free and dairy free and egg free, which has helped improve some symptoms, and I've lost 30lbs. I "look fine" but I don't feel fine. I just want to feel my normal self again.