- CASE FILE
I was diagnosed with kidney disease at 39. I suffer from severe depression & anxiety. I am a prisoner in my home because of other problems.
ABOUT THIS CASE FILE
I found out I was in stage 3 renal failure June 27th 2014 at 39 years old. The doctor I had said it wasn't that bad and he would just monitor me every 6 months. We went 3 times and went and found a different doctor. She wasn't helpful either so on to the next. She was great after the first appointment, the second was a biopsy. I was "blessed" with PKD & FSGS. I also have hypoglycemia, hypothyroidism, tachycardia, severe depression, PTSD, anxiety, excessive sweating, or excessive itching all over my body, bruising easily, heat intolerance, fainting, fatigue, loss of interest in life, my feet always feel so cold that they feel like they are going to break off, migraines, brain shrinkage (the doctor said I have the brain of a 65 year old not a 44 year old), dizziness when standing, low white blood cell count, loss of long & short term memory, easily forgetful or confused (brain fog), I have a scar on the back of my head that swells and hurts often even after 7 years, my sight is getting worse pretty fast, loss of appetite, 128 lb. weight loss in 2 years (by just laying in bed or sitting on the couch all day), my menstrual cycle is extremely heavy with clots the size of golf balls, my bones and joints always hurt, I can't walk to my mail box and back without getting short of breath, I'm sure there are more but I just can't remember right now. Then I was getting strep every month so my nephrologist asked me to have my tonsils removed. Shortly after I had to have my gallbladder removed. Now I have constant uti's and kidney infections. My latest blood tests have my GFR at 24 & my C-Reactive Protein is 91.6. My AST & ALT are both high. My ANA has come up positive for every blood test I have had but the doctors here either move on to better jobs before they can help me or they just don't take me seriously. My Nephrologist asked me to get referrals from my primary care doctor to a rheumatologist, Gynecologist, & hematologist. But when I went for my appointment she had moved on. The next lady was great but when I went back for my follow up she had also moved on. Now my nephrologist has moved on to a better job. My neurologist said I needed to be tested for cancer because of the weight loss but my new primary care said she didn't think it was necessary. I am getting more and more depressed every day because I just want help to feel better and resume living my life. I had to quit my job and my volunteer work and stopped driving because I'm afraid something would happen to me & I couldn't live with myself if I hurt someone else. So now I'm a prisoner in my own house. I feel so bad for my husband because we use to have an active life and now if he does something he does it alone. Please, I am desperate for help!