- CASE FILE
Been hospitalized twice for paralysis of limbs, along with twitches, headaches, optic neuritics, vomiting, nausea, low vit D, and more . . .
ABOUT THIS CASE FILE
I am an 23 year old female. When I was a senior in high school I put on 150 pounds in one year. I soon developed twitches in my legs but thought nothing about it. On 9/29/2018 I was admitted to Trinity Hospital because I was unable to open my right eye without extreme pain (light sensitivity). During the ER exam, I was admitted for an MRI, during this procedure I proceeded to lose all feelings in my arms and legs. Within 20 mins, I was unable to speak, was delirious (according to family) and felt like my brain was on fire. The ER doctors admitted me and started me on IV Steroids. The doctors ran numerous test and couldn't find anything wrong, no lesions (brain or spine), no infection, and no tumors. They decided to release me saying that I developed optic neuritics (though my eye pressure wasn't that high). I spent 1 week in a rehab center learning to walk and another 3 months in out patient therapy. For the next 6 months I developed constant vomiting and nausea, sudden jerking of my body, tingling sensation in multiple parts of my body randomly, and pain in my feet when I stand. On March 21 2019, while driving, I started to notice that my mind became foggy, and my reaction time was beginning to become impaired. My head felt hot, and I noticed that my speech was slurred and sluggish. I felt my legs start to lose sensation (felt like ants crawling on them), when suddenly I couldn't move my left leg. I quickly pulled into the Country Side Hospital and by the time I parked, I couldn't move either of my legs. I called the hospital; they sent their security team and an ambulance. By the time the ambulance got to me I was stuttering and was not able to talk with the staff that well. I was admitted to the ER, where they contacted all 4 of my doctors and put me on IV Steroids. During this visit, I was retested for MS and NMO, along with other tests and blood work. No answer was found. I was only in the hospital for 3 days with 2 weeks of out patient therapy. Since this last attack I have seen multiple doctors, have had 3 MRIs, 1 cat scan, over 450 tubes of blood drawn (yes, I have been counting), and even been seen by multiple departments at the Mayo Clinic in Jacksonville Fl. I was put on Vitamin D, 50,000 IU twice a week, because my Vitamin D level was at 17. No doctor can figure out what is causing all of these symptoms. I live every day in pain because my feet hurt to walk on them (X-ray and examination shows no cause of the pain), sudden jerking/twitches of my body (sensation feels like an electric shock going down my spine), random fevers (without elevated white blood count), everyday I'm nauseous, and almost every day I vomit. I sometimes feel electric shocks in random muscles in my back. These shocks are quite painful and cause me to yell and jerk violently. But MRI and spinal taps are negative. I also have a lot of issues with mixing words up when I talk and transposing numbers and words when do I homework and essays for college. I have been tested for numerous infections, autoimmune disorders, and neurological diseases. I'm always negative. I have a total of 2 optic neurologists, 1 neurologist, 2 rheumatologists, 2 endocrinologist, and a few others. I play the game of 'pass the patient' between all 10 of my doctors. I am not on any medication besides 50,000 IU of Vitamin D twice a week. I have been told by one of my doctors that I need to learn to accept the fact that one day, I might be blind, unable to speak and completely paralyzed. Other suggest meditation and a stress free life. Please help me!