I am a Hispanic 38 year old mother of 4. We live in West Texas. I have been confined to a wheelchair for almost 5 years, and required help for everything from brushing my hair and teeth to showering and dressing. It all started with weakness and clumsiness in my hands and walking. To almost a year later not being able to walk. I have been to many doctors including the Mayo Clinic in Phoenix and Rochester. Every time I see a new doctor they always make the comment that I am a very rare case. I've had many exams done; from spinal taps, bloodwork, and numerous MRI's and ct scans; and still no answers. They have mentioned that it could be neuropathy and sjogrens but haven't had any treatments or explanation of what that could mean. I also have lost 100 lbs if not more. I wasn't able to keep food down for almost 2 and a half years. I just recently received help from Dr. Tajone and Dr. Chan from Conroe and Houston Tx. They found that I had acalasia 2. I had a robotic esophageal manomatry performed by Dr. Chan. Other than that I still have no idea why I can't walk or control my extremities. I have numbness and tingling on my hands and feet and loss of perception. As if this wasn't enough I have very bad anxiety and depression. All of this has taken a major toll on all of us emotionally, financially, physically, and mentally. Any type of answers or just a plan of action would be great!