- CASE FILE
I have the exact same story as Mike, bloating, pain in lower left abdomen, Bright red bloody stools, I have been diagnosed with Barretts E
ABOUT THIS CASE FILE
Same as Mike but allot more!!! Bloating, pain in lower left abdomen, bright red bloody stools, I have a chronic high white blood cell count I have had an upper and lower GI and upper GI series with contrast and I have been diagnosed with Barrett's Esophagus from the upper GI. I also have a genetic disorder, discovered through genetic testing and a Nerve conduction/EMG test, that may contribute to trouble swallowing it is HNPP a disorder related to CMT. it also causes neuropathy in my lower legs and hands with the associated weakness this includes a rash/blisters on my lower legs I have had for four years that will not go away even with the use of prescribed topical steroids and anti fungal medications. I have severe Hearing loss and Tinitus, they thought it was conductive hearing loss, I was referred to an ear specialist who said I needed a stapedectomy, I had the surgery on my left ear however the Dr. said that he did not find what he expected and that my ear bones were quote "Wierd" I have since recovered from the surgery and still have the same conductive hearing loss and was been told that my Tinitus and hearing loss is nerve related. I not only need help with my "mike symptoms" I need help tying together all of these Nervous system related issues. My intestinal issues are debilitating, I have to plan everything I do around the proximity to a restroom my mood has been severely and effected by this as well I have had some relief when I eliminate certain foods from my diet such as Soy products but that extremely limits my diet I also need hearing aids but the hearing specialist I was referred to said the the specific type of hearing loss I have requires high end hearing aid with more channels than low end hearing aids I can not afford the low end hearing aid let alone the high end hearing aids, my Tinitus isn't just an annoying ringing in my ears it is a screaming loud speaker in my head with a tone of 10,000Hz. My hereditary neuroapthy is progressive and I have weakness in my hands and numbness in both my hands and feet and a persistent rash on my lower legs. My family doctor doesn't believe my HNPP diagnosis is a problem and will not prescribe Gabapentin for the symptoms. After the EMG test they directly scheduled me for an MDA consult with the specialist in Boise which is up coming I will keep you informed of updates. PLEASE PLEASE PLEASE help me with all of these Nerve related issues, I want my life back, my wife wants the old me back. I just want to have at least a bit of relief and to help any one else experiencing these problems P.S. I live in a rural area so the choice of doctors is limited and mine is set in his ways.