- CASE FILE
Undiagnosed 4 yr old almost 3 years. Aneursysms affecting L&R side brain, abdominal aorta, left renal artery, &5+ in each arm, leg, and more
ABOUT THIS CASE FILE
Jaicey is 4 now just after her 2nd birthday we found a lump in her left arm. Within weeks it grew and with severe pulsation that doctor would not look more into. After 2 months she was sent for biopsy which i refused until we received an ultra sound, this is where we found 2 aneurysms. Jaicey was sent that night to seattle where we found 8 in her left arm and felt them in her right arm as we held her down. The next 48hrs was hell. She was diagnosed with more then 35 aneurysms affecting every major artery in her body. Jaicey has had some of the biggest testing known to man. Myochindrial, chromosme, whole exome sequencing broken down and all matched to me her father. NOTHING! Its coming up on 3 years this year with no anwsers. Boston childrens hospital said there was nothing they could do either have never seen anything like it in a child so young. Jaicey is considered a medical mystery in a national data base hoped to save another child one day but most likely not her. This last year jaicey has gone through 4 going on 5 brain procedures. Stenting and coiling on left side of her brain has not worked and continues to risk her life daily and is unknown why. Within the next month she could lose her kidney because anatomy doesnt allow for a stent. Jaicey is on 2 blood thinners to prevent strokes and has had her 4 teeth ripped out due to stomach acid melting them and her tic from fear and grinding them down. I need help that no one can seem to give us i am deseperate to save my daughter and not watch my 3 other children suffer. We need anwsers. Can you possibly give them? That is a hope. Iv exhausted almost every other option.