- CASE FILE
140 characters aren't enough. I have suffered for almost 4 years now since I turned 15. We have moved around to find answers but nothing.
ABOUT THIS CASE FILE
I have suffered from Chronic Pancreatitis for the last 4 years. I am a Cystic Fibrosis Carrier and I have a Pancreatic Cancer gene that they believe somehow mutated together. I have constant nausea and vomiting. I can go days without eating or drinking and still continue to puke bucketfuls of vomit. The vomit doesn't smell normal either. It's worse. I have constant painful heartburn and extreme back pain. My spinal cord is damaged because of a pseudocyst that I had that was filled with pancreatic enzymes. They did a partial pancreatectomy, a splenectomy, removed part of my stomach, my gallbladder, part of my liver, and a foot of my intestines a few years ago. But I continue to suffer. When I first got sick, the Sacred Heart hospital starved me. I would be in the hospital for 10 days and then when I would finally get home I would be back in 2 or 3 days. They would force-feed me morphine so I would be quiet and not scream from the hunger and abdominal pain. For months I had constant MRI and CT scans and they somehow missed a giant pseudocyst right on my spine. Because of that negligence, I now have permanent nerve and muscle damage, and I often have to use a walker or a wheelchair. They also would leave bruises on me and accuse me of faking. They even allowed an IV to sit in my hand for over 8 hours and it kept pushing fluids and my hand swelled like a balloon. The doctor there almost killed me. After that, we moved to USA Women's and Children's in Mobile, Alabama. They were a lifesaver. They were the ones who performed my surgery. I had fluid on my lungs and they thought it was just pneumonia, but when they pulled the liter and a half off my lungs and they tested it, it was live pancreatic enzymes. They bore a hole through my diaphragm and into my lungs. We wound up having to abruptly move due to a family emergency. We ended up in Clarksville, Tennesse. I continued to be sick constantly and I was going to Vanderbilt Children's Hospital. They did hardly anything for me. They missed several spots and tumors around my liver and pancreas. Eventually, we moved back to Florida. But unfortunately, I was unable to return to USA Women's and Children's because I was 18. So I started going to a local hospital in Gulf Breeze. They have done basically everything they can do for me but still cannot give me any answers. I now have seizures, tremors, and pseudoseizures. I have to rely on my mom and my baby sister to help take care of me. No one knows what is wrong with me or how to fix me. I don't want to keep holding my family back. Because of my illness, my sister has missed out on so much of her high school experience, just like me. The difference is, I am the one that is sick, but she is suffering too. She spends almost all of her free time helping me and my mom with everything we need. She is even going to nursing school to become a nurse after seeing the way I have been treated by some of the very people who are supposed to care for you and nurse you back to health. My mom and sister would go to the ends of the earth to find answers for me. But when you aren't millions of dollars rich, it becomes hard to keep searching for doctors and moving around. I need help. I need to know what is truly wrong with me.