- CASE FILE
My case is eerily similar to Sean's case from Leeds AL. I grew up on a cattle ranch 20 miles away. I live here now. Neuromuscular RT sided.
ABOUT THIS CASE FILE
I'm 38 years old. Neuromuscular problems to right arm, then leg almost 4 years ago. Two years before, C3-C4 Spinal Fusion. Since I have progressively deteriorated. RT thoracic outlet decompression, later considered misdiagnosis. Sudden vision changes, associated with severe headache and pain behind left eye. Gallbladder removed this summer, but abdominal problems progress. Double hip reconstruction this summer. L5-S1 Spondylosisthesis. Inability to lower my high blood pressure. Bladder wall thickening. Fatty liver. Terrible pain and weakness with little to no activity. Constant stomach problems. Short term memory has evaporated. Two lymph nodes removed. Age 12-neck/pressed on Spinal column. Reported inguinal lymph node pain after surgery. Inguinal lymph node removed at age 21. Still large lumps on right side of neck. MS suspected due to irregular brain scan, but ruled out. I played sports growing up and in college, doctors now say all this is more than likely connected. Rheumatologist referred me to the UAB Undiagnosed Disease and Genetics Program, which turned me away. Scheduled for consultation with Neuromuscular/Neurology Department in February of 2020. No earlier appointments I am told. I cannot wait another six months for a consult. This has taken my life away and no medications or therapy has been productive.