- CASE FILE
Im 39 have over 75 listed conditions, rare genetic disorder, and I have had over 70 surgeries. Every dr has given up on me & sent me away.
ABOUT THIS CASE FILE
I have been in and out of so many specialists I’ve lost count, almost all have said there’s no hope for me, or no help, or just can’t figure out what’s wrong and push me off to other doctors. I live everyday wanting to die. I vomit for 24 hours, 7 days a week, I try to eat I choke and vomit. I have lost over 150lbs most of that in less then 6 months, I constantly lose weight, I have no appetite, I can go a week without being hungry, or if I am I eat and it comes right up almost immediately. I have gone from 300lbs to 150lbs and I’m still losing weight. I am having uncontrollable bowel movements and at the same time I sit with a bucket in my hands and vomit non stop at the same time. I am very malnourished, I look very ill, I’m low on all vitamins. I have a rare genetic disorder that causes so much pain, surgeries, etc. It’s called EDS. I have been told I was misdiagnosed with fibromyalgia and I have MS since I have a lot of white mass lesions on my brain, but unfortunately since every dr I have seen hasn’t done the workup I’ll never know. They all just see the humongous list of conditions and surgeries and just say wow there’s no help for you and don’t try. It’s hard living everyday knowing there’s something wrong especially being in the medical field my whole life and nobody listens. I’m 39 and have been using a walker and wheelchair for years, 99% of the time I’m stuck in bed and can’t get up to do simple tasks. I have 4 kids and they need there mom back and healthy, my oldest worries about me dying everyday. I have now been diagnosed with Supra ventricular Tachycardia and my heart has gone to well over 200BMP, I know that won’t kill me but it can lead to an arrhythmia that can, there talking about heart surgery. I need knee replacements but I’ve been told for 20 years I’m too young so I just have to get constant knee surgeries, ligament replacements from cadavers. I just want a semi normal life, I want to just have answers. Everyone has said if I was you I would of killed myself 20 years ago. I have severe insomnia, and narcolepsy which is rare for someone my age and was diagnosed with it well over 15 years ago. I have been up for 8 days straight at times. I usually get 1-3 hours sleep a night if I’m lucky. I’m on over 18 pills a day and about 5 of them are just to help me sleep and I have medical marijuana for sleep and I still don’t sleep. I just am at my wits ends and don’t know what to do anymore. My meds are causing severe irreversible damage to me and causing surgeries and more diagnosis’s but I need them, even though they barely help. I saw this how was coming out and I instantly thought omg someone who can save me, save my life, save a wife and mother. Drs who actually seem to care and want to help. I just pray to god you guys want to help me. I have so many more medical issues and so much more everything that it just lists other for on here. So much I can’t explain just by typing. Someone please help me!