- CASE FILE
When I turn my neck at a diagonal angle I pass out
ABOUT THIS CASE FILE
My symptoms I currently experience are simple. When my neck is stretched or at an angle or I pinch my shoulders back the following things have a chance of happening, several at once or just one or two at the time depending on the severity of of the attack:
My eyesight goes black
My hands and arms go numb
I fall down
I stop being able to understand words when spoken to me
I start breathing heavily / struggle to breath
I become unable to talk
I get a bad headache
What always happens according to doctors is my pulse gets weak but they don't know why.
An episode lasts ~20 seconds at most, which would be manageable if I weren't having them 20+ times per day. So far it has caused me to have to miss several weeks of college because of a concussion I got from falling and hitting my head in my dorm room. I also took a semester off of college so I could fill my whole schedule with doctors appointments, and during that time I got a 2nd minor concussion from falling in my room. I've had more falls that haven't resulted in concussions but have covered me in big angry bruises.
I haven't always been like this. I can't say for sure when it started because it has been slowly progressing and getting worse, but if I had to guess I'd say sometime between middle school and highschool. I first realized turning my neck was the trigger early in college.
I've changed my life around it, and not having a name makes it hard to explain my problems to people in my life.
I've been tested for things like:
Cartoid Sinus Sensitivity
Vascular problems in my neck and brain
Bow hunters syndrome
I've had Head and brain MRIs
I've had CT scans
I've had blood tests
I've had xrays of my back to check for extra ribs
Testing for Neurological problems
And more tests I can't list off the top of my head.
At one point they were preparing me for vascular surgery because they thought I had subclavian steal syndrome due to what we later found out was a faulty ultrasound after redoing the test. I met with the vascular surgeon and he felt my pulse during an episode and said I didn't need the surgery.
The only time anyone has told me any sort of diagnosis was a nurse at the hospital I went to who said it was because I was a girl. I started arguing and she said it got worse when I was on my period, but I had never had a major fall at that point while on it. She stopped listening and left.