- CASE FILE
19 Y/O female, w/ memory loss, confusion, increased pain, night seizures, hallucinations, all tests come back negative, please help!
ABOUT THIS CASE FILE
Complete list of symptoms: 1. Mentally foggy 2. Mentally laggy like when you press a button for a video game character to move but it doesn't move until seconds later. 3. Forgetful, I forget entire conversations minutes after I have them. 4. Hallucinations, both audio and visual. Audial just sounds like murmurs, I can't make out what they say. Visual ones are black shadowy figures. 5. I feel extra emotional. Little things like silverware being on the wrong side make me cry. This never used to happen. 6. I feel extra sensitive to things like noises and textures. I'll have to cover my ears if there's certain noises whereas this never used to happen. 7. I have urges to do things like bite myself or press my nails into my skin. 8. I have had a heart rate of about 130 when walking, where it used to be about 90. 9. Trouble breathing when heart rate is high. 10. I am either hungry all of the time or not hungry an entire day 11. I get headaches about every other day in different locations. 12. I get dizzy/lightheaded 13. I have what we think are nocturnal seizures because I wake up with tight muscles and a lot of confusion/disorientation.
Two things to note: I was born prematurely and placed on a ventilator. Secondly, all symptoms except for the hallucinations began in March. The hallucinations began about five years ago. Therefore, I don't really think the hallucinations are related to this matter, but it's worth noting. In March I woke up in my parent's house with no idea where I was or what clothes I was wearing, which now sounds like I had a nocturnal seizure, but at the time I thought was a mental break. I was taken to the ER where they did a basic blood and urine test which came back negative for everything they looked for, and they sent me to an outpatient mental health clinic for a week. The psychiatrist there only met with me for about 5 minutes and insulted me before giving me a diagnosis of a personality disorder (which everyone I met said made no sense). From there I met a therapist who I adore, and she sent me to a neurologist. Neurologist originally thought a diagnosis of limbic encephalitis made sense. He ran CT scans, EEG, spinal tap, bloodwork, and a MRI. Everything came back normal except for a flare on my MRI and an incidental finding of cysts on my lungs. He ruled out lung and ovarian cancer since this type of encephalitis is often caused by those cancers. The cysts sent me to a pulmonologist who determined that they're probably a result of the bronchopulmonary dysplasia I had as a baby. Pulmonologist sent me to have an EKG and ultrasound done of my heart, both of which also came back normal, except for my heart beating too fast. The neurologist has stated that he has run out of tests and he cannot do anything for me, so he sent me to a psychiatrist. The psychiatrist (who got offended by us questioning him and took two phone calls during our 20-minute visit) diagnosed me with psychosis. Which, I can see why that came up, but two important things to note are that psychosis is generally a symptom, not a diagnosis, and that generally a person is not aware that what their hallucinations aren't real. I can determine that the hallucinations that I have are hallucinations, without any type of help. Not to mention, it doesn't address my physical symptoms. I am willing to believe that my issue might be more psychological than neurological, but I want an answer that makes some semblance of sense from someone who is respectful enough to listen to what I am trying to say. I have quit driving, working, and going to school because of these problems. I want my life back. And the only person who has offered any semblance of a solution was the psychiatrist who said I'm psychotic, said I could try anti-psychotics, and then walked out of the room when I asked him why he thought I was psychotic. Please, throw out any ideas you have, even if they're far fetched.