- CASE FILE
Constant pain and daily constipation
ABOUT THIS CASE FILE
I need to find someone who will do whatever testing is necessary to find out why I have the problems I have and effectively treat them.
I was diagnosed with IBS in 1991. In 1995 I while I was pregnant I noticed a tiny white spot of my right had. After giving birth to my son the white spots got worse and now are everywhere . I was diagnosed with Vitiligo. I also had increasing constipation and pain issues that jumped around to different areas. I was 39 when I had my son. I wondered how women would choose to be pregnant that late in life if they knew they would feel so bad after.
In 1999 I was told I had arthritis in my hands. In 2002 I was diagnosed with Fibromyalgia. I was treated with medication and therapy that didn't help. I continued to have wide spread pain and daily constipation no matter what I did. In 2006 I had had enough and began to seek treatment. To date I have seen 16 different doctors, chiropractors, physical therapy and massage therapist. Some therapy for pain and some for the constipation. I have also been told I had bursitis in my right shoulder, arthritis in my right knee, plantar faciitus in my feet. Plus numerous other areas of pain. Including nerve pain that is like an electrical zap anywhere at any time. There have been times when I bend over and feel like a bat just hit me across my entire back. When I cough to deep I can get a nerve pain that radiants across my chest. I also have weakness in my legs and will lose mobility at any time. Catching myself from falling by hitting a wall or grabbing a solid object. I can't sit or stand for very long. Needing to move around every few minutes. Added to everything I have restless leg syndrome, which affects my sleep. Bad leg craps if I don't take potasium. And one of the worst is esophogial spasms. They start when I eat and make continuing to eat impossible until the spasm relaxes. I have to take reflux medication for that.
I continued to have wide spread pain and daily constipation no matter what I do. I have been gluten free and diary free since 2011 at the advice of doctors. I try to watch what I eat. I cook at home and do not do any fast food. Only occasional take out or restaurants. I drink usually no more than 2 cups of coffee in the morning. Water all day. And an occasional glass of wine. I do not drink soda. I eat foods that are limited in processing. I don't exercise due to the fatigue and pain.
I take the highest strength of Linzess plus Mirallax, and added fiber. I do everything I can, yet the constipation persist. Bad, daily. This has affected my entire life. My son's life and my late husbands life. I could never go back to work. I hadn't been working when the sypmtoms got bad. I never went back to work, so I can't get disability. I hesitate to go anywhere so it affects my social life. It affected us financially.
The worst digestive symptom started in 2006. My primary care doctor gave me a prescription for the constipation and my system rejected it. Making symptoms worse. Ever since then I have to be very aware of the constipation being worse every time I try to take a new medication. Supplement or prescription. I take one supplement called Parotid that is a cell rebuilder. Before one doctor gave me that supplement I couldn't take any medication. Not even Aleve for pain, without my whole digestive symptom shutting down. I often stop taking everything except the Linzess and fiber to see if it helps.
No doctor will go near this. One recently stated that since I was autoimmune that was the reason why I can't take medication. Failed to suggest how I could handle the issue.
I had intolerance test to food in 2016. According to the testing I am intolerant to 87 foods out of 96. So apparently I can't eat anything without consequences.
I need help finding a better way to manage my symptoms even if I can't find a cure. I am 63 years old. My 23 year old son is on his own. My husband unexpectedly passed in 2017. I live alone. It is very depressing to think I might be living this way for another 20 years.