- CASE FILE
Rare Lung Disease 500 Plus Smooth Muscle Tumors In Lungs
ABOUT THIS CASE FILE
In 2013 I became ill and had to go to the emergency room. I was coughing and very fatigue and thought I just was catching a chest cold. I worked as a pediatric nurse so I thought also maybe I just picked up something from work. When th...
In 2013 I became ill and had to go to the emergency room. I was coughing and very fatigue and thought I just was catching a chest cold. I worked as a pediatric nurse so I thought also maybe I just picked up something from work. When they did the chest X-ray they found about 5 spots on the base of my lungs. They said I should follow up with a pulmonary doctor asap. I did follow through and they told me its probably nothing but we will have to monitor you every year. And I did just that. Until 2016 they began to spread more and more. By 2017 I my lungs were completely filled with these tumors. I went through all types of tests and everything kept coming back negative. From blood work to even a Bronchoscopy. The doctors said I would have to go through a more specific surgery. January 2018 I had an open lung vats procedure with wedge resection. I was in ICU and with a chest tube for almost a week. The doctors said they would be 100 percent positive they would know what this was by doing this procedure. Unfortunately the doctors became even more puzzled by my condition. They said they have never seen anything like this. My tumors are benign but causing great difficulty in breathing. The top pathologist in the nation were even scratching their heads. They say they are smooth muscle tumors of uncertain malignant protentional. They may think they arising from my uterus. Doctors of all specialties say they have never seen this before and are very shocked when they see my cat scans. In 2007 I had a myomectomy done. That is a procedure in which I had a fibroid removed and they think the fibroid seeded itself and over time it has spread to my lungs. However that theory has yet to be determined. I have not been able to work for more than a year now. I have fallen so ill and my immune system so fragile. I have been to doctors from Miami to Orlando trying to find a cure. and I wont give up.