- CASE FILE
24/7 Severe & debilitating pain in neck, upper back,between sits bone pain. 85% all over body pain. Nerve, muscle & tendon pain & stiffness
ABOUT THIS CASE FILE
I apologize if this is scattered or repetitive. It's a result of what's happening with me. I’ve had several neck injuries in my lifetime. A 35# tire dropped from 5 feet above me. I was thrown by horses where I ended up hitting my head or rolling in a ball.
I used to barrel race- THIS IS NOT ME, BUT IT WILL GIVE YOU AN IDEA OF WHAT I DID. https://youtu.be/Eq7N_RB2U_4
I was in excellent shape. I rode and exercised every day.
I worked 2 jobs. I refinished antique furniture. I socialized, dated and traveled.
6 years ago I was thrown by a young horse. It was a violent ride. I stayed on for several seconds which caused a lot of damage to many areas. It’s finding a cure or some relief that would give me a life where I can live. As it is, all I do is exist.
To help you understand the impact of being thrown, please see the video https://youtu.be/dfRtcrCdbvQ In my case I was riding with a regular barrel racing saddle. I hit the cantle (back of saddle) and horn (where we hold on). When I landed, I landed on my neck and back. I didn't immediately go to the doctor as the pain and arm weakness/tingling didn't happen until a few weeks later.
I’ve seen neurologists and pain specialists since the surgery.
I had a cervical discectomy, plate with graft C5-C6.
After the surgery I began feeling agonizing pain in my neck, upper middle back and butt.
Pain specialists diagnosed me with ischial tuberosity pain and cervical radiculopathy.
The pain was not sufficiently addressed. Multiple medications were prescribed. Some dosages have been raised, causing weight gain.
I’ve tried massage, deep tissue massage, light exercise, physical therapy, trigger point injections, epidurals, reiki, chakra alignments, tens units, cupping, acupuncture, etc., trying to relieve some of the pain. Some work for a few hours but then the pain is back.
The medications partially caused weight gain.
In order for me to move and function, I’ve used heating pads 24/7 since the surgery.
I now have diagnosed 2nd degree burns from my neck to my knee.
In May was hit by a truck. I ended up with whiplash twice due to impact. I now have nerve impingement's above and below plate. Severe shoulder pain in one shoulder and arm and elbow pain in the other. Both tingle. They want to do more injections because I’m already taking pain medications and no more will be prescribed. I fear the danger and damage to my nerves, etc., as well as weight gain. I'll never have another neck surgery because of what's happened as a result of the first one.
The ischial tuberosity/ sits nerve pain is so severe, the last 6 years I’ve only been able to sleep on my right side.
If I’m on the stool in the loo too long, I have severe butt and leg pain. My thigh and leg go numb. Sleeping on my back causes symptoms similar to Stiff Person Syndrome.
When I wake from sleeping on my back, muscles in my neck and bootie, cramp & burn for days. It feels like it puts my neck out.
I have balance, focus and memory issues.
My employer bought a PEMF mat for me just so I can try and relax and a reclining chair to take pressure off. I have to de-compress my neck & spine about every 20 minutes to relieve some of the pain. It doesn't relieve upper back pressure & pain.
The neck pain can only be described as hot burning lava, acid and razor blades going from my neck down to the middle of my back. Stopping and going again in my rear end.
There’s no way for me to relax and be comfortable. My neck, butt or back prevents me from being in a position or sleeping in a way that doesn’t cause agonizing pain. My right leg is what's keeping me upright.
It hurts to walk, sleep, stand, sit, lie down, look up (at the stars -which I miss) and drive. I normally order groceries online as I'm unable to walk and stand very long on any given day. I can't lift more than 10#'s without causing severe neck and shoulder pain. Dragging a garden hose will cause me to be down a couple of days. I often use a dolly/furniture dolly to bring in groceries and pet food. The only thing keeping me upright is a strong core & fading determination. Being like this and living alone is terrifying.
I'd like to be videoed for a week or a few days so Dr's could see and understand what's happening.
I’m unable to focus for more than a minute or two because of the pain.
I fear if I ever lose my job, there’s no one who could or would hire me.
I feel a lot of pressure on my head though it’s being pushed down.
I don’t sleep well as pillows and incorrect position cause severe neck pain, cause my leg and butt to hurt.
The pain is continually getting worse.
I’m rarely able to cook nutritional meals. As soon as I get home, I have to lie down.
I am the only means of support. Disability (if I’d even qualify) would not be enough for rent.
I work so I have insurance and so I can pay for medication (and take care of my cats & dogs) but I’m missing more and more work.
Since the accident of May in this year, my life has gone from a miserable and horrifyingly painful existence (I haven’t lived in years).
To unbearable and pointless.
I’m scared. I’m alone.
Some relief. A diagnosis. Something new to try would give me hope. .
You’re all so kind for all you do.