- CASE FILE
Unexplained chronic fatigue, chronic headaches, ear ringing, sudden smell intolerance.
ABOUT THIS CASE FILE
I’ve been suffering from tinnitus for over 5 years. My ears started ringing suddenly one night after I had been taking Motrin due to an injury. The doctor thought maybe the Motrin was the cause. But my ears never stopped ringing. Easter of 2016 I got the worst migraine of my life, that lasted about 2 weeks and took 2 urgent care trips and 2 ER trips to get under control. Since then, I’ve had a constant headache, that has not stopped, except for 2 occasions. 1. After a spinal tap - but everything was normal. And 2. At the hospital recently, after being given IV benedryl, reglan, toradol, and zofran. My headache was completely gone for about an hour, my blood pressure dropped to 96/53 and it was the best I could ever remember feeling. But once I stood up, everything went right back to how had been. My neurologist whom I no longer see refused to give me reglan. I saw a rheumatologist because of the suspicion of lupus, but every single blood test came back normal, but I did find out I was positive for the HLA-B27 gene. I was diagnosed with ankylosing spondylitis, and started an immunosuppressant for that. There’s a possibility that the ankylosing spondylitis is in my neck, and it could be causing my headaches, but I’m not sure. I’ve had a loss in my range of motion, possibility from the AS, but hoping that will get better. I’m only on month 2 of immunosuppressants. I have noticed my back and hip pain getting a bit better, but my headaches are still constant. I got one series of Botox injections, and it made my head hurt so much worse that I refused to go back. Over the past few years I’ve had to change my entire life. I used to wear perfumes, now I can’t even use scented deodorant. I can’t even be around other people who wear scented deodorant. I can’t put my hair up anymore, I can’t wear glasses anymore, and I’m constantly having to move around and away from people because I am so hypersensitive to smell. I was told by one doctor I have occipital neuralgia, and then another I don’t. I feel as if I do, only because of the symptoms and location of my pain. But, the pain is in more areas then just that. It’s everywhere. My entire head, every single inch of it, hurts, every minute of every hour of every day. I’m at a loss, I’m 23, and I’m so tired of being in pain. So tired of being tired, so tired of my ears ringing, and so, so tired of my head hurting. There’s so much more I’ll have to add, and I’ll have to organize this a bit. I’m seeing gastro for possible inflammatory workup, and I’m trying to get into Hopkins headache clinic.