- CASE FILE
Someone must have a voodoo doll of me! my body is failing and I feel like I’m being electrocuted, choked, stung and stabbed every day.
ABOUT THIS CASE FILE
I have always had weird pains and sensations (tingling and shocks), I used to joke with friends that someone had a voodoo doll of me because it would feel like someone was stabbing me with a pin needle. It has progressed rapidly in the past few years.. to where I feel like I am being electrocuted some times. It has also begun making my hands and arms constantly cold and tingly, as well as making me loss strength in my arms.. Other issues ive had on-going most of my life are kidney pains, hip pains, stomach pains, cold chills/cold sweats, dizziness/vision issues. I always get internal infections such as UTI’s yeast infections and Bacterial infections. I am always positive for strep b but never show symptoms of strep and always have a higher white cell count than normal.. but I never get colds in general, or sick, or have fevers... Actually my temp runs very low around 96.6, when I feel feverish it goes to about 98.8 I haven’t seen it go higher than that most of my life, and when I get cold sweats it drops below 95.5… when i was 13 I would have fainting spells when it dropped that low, id get extremely cold and sweating , pains in my stomach dizzy and then everything would just go black... doctors never found out what was causing it and for 2 years I didn't have any episodes so I never indulged in farther dr. visits about it.
I then got a bladder infection that didn't show up in my urine test and it ended up spreading to my kidney which resulted in a blood infection and blood transfusion was needed again they had no idea how it spread that fast and went un noticed. a year later the fainting spells began again, but it was very sparatic.. sometimes only once every 3 months, sometimes twice in a week but then no more for almost a year. So again I ignored seeing any one about it (since they couldn't help before anyway) finally when I about 23 I had a bad episode of it ..3 times in a week 2 times in a day, so I went to ER. by the time I got there it wasn't happening anymore and they said there was nothing they could do, that I have to make it there while I'm going through it.
a few months later my whole body began to change.. new symptoms after symptoms started. The tingling and shocks got worse, my legs were showing signs of Reynaurds, melanoma tags appearing, I had trouble swallowing, chest pains, I was thirsty all the time, but felt the need to spit a lot. I developed tonsil stones, I had constant pains in my sides (near my kidneys), my toes were going numb, Neck pain, muscle tremors and muscle cramps, tail bone pain, my joints began hurting, I developed hair folitis, began getting hard lumps on my face that would come and go, I developed allergies that I had never had before, I ignored most except one that wouldn't stop and got bad quick.. itchiness.. it started on my head.. for a week I swore I had to of had lice! but I didn't .. and then it spread to my face.. then my neck and shoulders.. then my back and thighs.. feet... until it was everywhere! anything that touched me or scratched me, getting dressed, wiping my self, putting my hair up.. would through me into a deep scratching attack... (the only change in my life around the time of all the progressed symptoms, was I went on vacation to Disney, and I moved to a new apartment) .. once home from vacation is when this journey became worse..crazy...scary and even more unsolvable!!! ...….
I am seeking help because after 5 years of many Doctors, specialists, countless blood tests, scans, and ultrasounds no one has been able to diagnosis me. During these years my symptom list has only grew, and my physical issues worsened. The first two years they thought it was just allergies but the allergist found no reason for my bodies reactions, since I am not allergic to anything except a minor dust/pollen allergy and a minor cat allergy. she gave me steroids that helped for a while and then Zyrtec. It kept my symptoms minimal for a few months. Then it stopped helping so she increased the dosage and that only worked for a few months more as well. I then began taking Zyrtec, allegra, and Montelukast every day.. and still It barely helps.. she suggested I had autoimmune or ulcertitis but I was tested and I was cleared. Meanwhile while the allergy meds barely helped with the itching, it was also not doing anything for my throat. I feel as if I can not swallow most days, but and time the dr looks at my throat there is no major swelling. So my Primary suggested Zantac, claiming it was heart burn.. It didn’t help at all either. She sent me out for more blood work and everything came back within normal range. The only thing slightly elevated were my liver levels but it was still not outside of normal. We did gallbladder ultrasound and that was normal. I still to this day (since I was about 15) eat to many sweets or drink a regular soda, or have coffee.. because if I do I get insane pains in my stomach as well as the sweats and temp changes!. (that's not the only time it happens but that is the only trigger I have noticed)
A few months later I began having sparatic episodes of high blood pressure. Id start my day at 110/68 by noon I would be up to 150/100 and at night time back down to 110/68. One day it spiked all the way up to 178/116 .. I thought I was going to die right there. During these BP issues I started getting small red spots all over me which I learned were blood vessels that have bursted under my skin. I have about 12-15 as of now. My Dr. has refused to give me medication for it because I am to young and blamed the episodes on my medication or smoking. So I stopped taking my medications and stopped smoking for over a week to see if it would make a difference… but it didn’t! I finally stopped trying to get help from her about it. A few weeks later my neck pain symptom intensified spreading to my shoulder and back. I went to an orthopedist and the xrays showed I had a minor slipped disc in my neck but nothing that should be causing as much pain as I was experiencing. They xrayed my lower spine and saw nothing.. the did an MRI but still saw nothing except a nodule in my thyroid.. the spine specialist had no idea why i was in so much pain nor why I was feeling "shocks" all over my body. he suggested I go to john hopkins to see someone who specializes in un common/unsolved symptoms. I went to my primary and I demaded to get an ultra sound on my thyroid even though she said it was probably nothing.. I am now waiting to see an ENT because the ultrasound did show that the nodule was larger than 1cm.
They still believe it is nothing and still are not any closer to helping ease this constant pain and shocks.
I am still itchy all the time, I cant be around any type of dust or I break out in hives and feels like im swallowing knives (even taking my daily allergy medications), I am still having cold chills and cold sweats, severe stomach pains, trouble swallowing, i still cant lift anything over 15 pounds without it causing pain.. * my previous job was cleaning houses that I did for years! so I lifted things often multiple times a day, was around dust 8-4 every day! then bam im not able to do any of it anymore*…. i cant wipe my back side, twist the wrong way, sit and bend, get on my tippy toes to grab a plate *im short so I used to do this often as well* , and many other typical bodily movements... without getting a muscle spasm !.. and worsening by the day are the nerve issues.. the shocks, the tingling, the pins, the muscle/bone pain, weakening of my upper body and arms.. nothing has been answered and im to a point where nothing ever will .. I look normal on the outside ( not including the raynauds pattern all over my body.. but I feel like my body is screaming on the inside! i love my life but I hate living in this body and feeling the way I do every day.
Im a single mother and have two daughters (age 10 1/2 and 1 year old) to take care of and because of this worsening unknown condition I had to quit my job of 7 years and take a part time job making half the amount I used to. I can barely pick my youngest daughter up some days because anytime I do the shocks get worse and my muscles feel weak. I can barely clean our house because after 10 mins of dusting I can’t breathe and I’m itching everywhere. I never want to take both girls in public together because I am afraid I’ll lose strength in my arms and not be able to protect them if anything happened. I haven’t been able to visit my best in almost 3 years because driving more than 30 mins starts to trigger most of my symptoms all at once. I haven’t been able to go to my fathers house in over 3 years because it’s so old and dusty I assume.. that I have an attack within 5 minutes of walking in.. My own house is even starting to bother me, I can’t keep up on the cleaning anymore, the dust is building. I haven’t been in my own bedroom in months! I sleep on the couch next to the air purifier. I just want to understand what happened? I was dealing with my initial weird symptoms for years and was able to get by just fine. all the new stuff within the past 5 -6 years though... and them progressing! Im losing hope.. im less scared for myself.. more scared for how these issues are going to impact my kids.. especially i continue to progress with no solution or diagnosis.