- CASE FILE
After a thyroidectomy and nephrectomy due to cancer, I experience chronic fatigue, migraines, hypertension, hypopara, and widespread pain
ABOUT THIS CASE FILE
I have always been medically complex and doctors have frequently minimized my suffering or failed to grasp the interconnectedness of my diagnoses and symptoms. After more than 20 surgeries, I am mostly suffering after my thyroid cancer diagnosis complicating treatment after my kidney cancer diagnosis. I experience chronic migraines, hypertension, peripheral neuropathy, neurocardiogenic syncope, fatigue, and widespread pain. Being a medical unicorn actually sucks because there is no roadmap for helping me and no one wants to step outside of their specialty to deal with my individual needs. I was in the hospital just last week after I nearly stroked out at work with scary hypertension and simultaneous migraine. My neurologist and nephrologist weren't consulted and was sent home with 3 different blood pressure prescriptions before they had a chance to work, no answers to why this happened so suddenly, and no assurance it wouldn't happen again. I have been in pain my whole life, now I fear I could die because my doctors are out of their depth.